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  • About
  • The Global ETD Search service is a free service for researchers to find electronic theses and dissertations. This service is provided by the Networked Digital Library of Theses and Dissertations.
    Our metadata is collected from universities around the world. If you manage a university/consortium/country archive and want to be added, details can be found on the NDLTD website.
171

Neuropsychological aspects of frontotemporal dementia /

Rascovsky, Katya. January 2005 (has links)
Thesis (Ph. D.)--University of California, San Diego, and San Diego State University, 2005. / Vita. Includes bibliographical references (leaves 211-233).
172

Anhörigas upplevelser av att vårda en familjemedlem som lider av Alzheimers sjukdom : En litteraturstudie / Relatives' experiences of caring for a family member suffering from Alzheimer's disease : A literature review

Ström, Caroline January 2008 (has links)
<p>Alzheimers sjukdom påverkar både patienten och den som vårdar honom eller henne. En anhörig vårdar ofta patienten och det har visat sig att de är utsatta för olika svårigheter.  Syftet med denna studie var att beskriva anhörigas upplevelser av att vårda en familjemed­lem med Alzheimers sjukdom. Metoden som användes för att besvara syftet var att göra en litteraturstudie enligt Polit och Becks (2004) beskrivning av genomförandet av en litteratur­studie. Dataanalysen skedde med kvalitativ ansats genom att artiklarna lästes igenom nog­grant och gemensamheter och mönster bland anhörigvårdares upplevelser söktes. Studiens resultat baserades på åtta veten­skapliga artiklar från vilka fem teman framkom. Resultatet visade att många anhörigvår­dare upplevde en förlust av relationer. De saknade relationen både med patienten och med vänner. De tyckte även att det var viktigt att ha fritid och tid för sig själva, vilket ofta var svårt att åstadkomma. Viljan till att söka ny kunskap blev stor när de tog på sig rollen som anhörigvårdare, och många upplevde olika lidanden och besvär såsom skuld och de­pression. Upplevelserna i resultatet åskådliggjorde att en stor del av de anhöriga inte kände välbefinnande. Detta resultat pekar på vikten av att sjuksköterskor är medvetna om de upplevelser och känslor anhörigvårdare har.</p> / <p>Alzheimer’s disease afflicts both the patient and the person caring for him or her. A relative often provides care for the patient and it appears as though they are exposed to different adversities. The aim of this study was to describe the experiences of relatives which care for a family member suffering from Alzheimer’s disease. The method used to answer the aim was to do a literature review by using Polit and Becks (2004) description of how to make a literature review. The data analysis was made with a qualitative approach by reading the articles accurately and patterns among the experiences family caregivers have been sought. The results of the study are based on eight scientific articles. Five themes emerged from these articles. The results show that many family caregivers experienced a loss of relationships. They missed the relationship with the patient as well as the relationship with friends. They also thought that it was important to have leisure, which often is hard to accomplish. The desire to seek for new knowledge became large when they became family caregivers, and many of them experienced different sufferings and troubles such as guilt and depression. The results show that many of the relatives did not experience well-being. On account of this it is important that nurses know about the experiences and feelings family caregivers have.</p>
173

Alzheimers - Hur livet förändras för anhöriga : En litteraturstudie

Persson, Emelie, Sandström, Sofie January 2018 (has links)
Bakgrund: Varje år drabbas ca 15 000 personer i Sverige av Alzheimers sjukdom som är den mest vanliga demenssjukdomen. Vård i hemmet har blivit alltmer vanligt och det kan innebära en stor förändring då ens partner drabbas av Alzheimers. Något som ofta glöms bort är det känslomässiga arbete den anhöriga får genomgå. Den anhöriga som lever med sin sjuka partner kommer nu behöva ta på sig en vårdarroll. De anhöriga upplever att det är svårt att tillgodose sina egna behov samtidigt som de vårdar någon annan. Syfte: Syftet med denna studie var att belysa hur livskvaliteten upplevs av anhöriga till personer med Alzheimers sjukdom. Metod: En litteraturstudie med kvalitativ innehållsanalys baserad på tre patografier. Innehållsanalysen utfördes enligt Graneheim och Lundmans modell för manifest ansats. Resultat: Studien resulterade i fem huvudkategorier och åtta underkategorier. Den första kategorin var Livet i vardagen med underkategorier Begränsningar, Känsla av hopp och Strategier. Den andra kategorin var Förändring i relationen med underkategorierna Förändrade roller och Kommunikation. Den tredje kategorin som framkom i resultatet var Upplevda känslor med underkategorier Sorg, Skuld och Ensamhet. Den fjärde kategorin var Betydelsefulla relationer och den femte Tankar om framtiden. Slutsats: De anhörigas livskvalitet påverkades när deras livspartner blev drabbad av Alzheimers sjukdom. Tillfredsställelsen i det dagliga livet och tilliten till framtiden försämrades och en känsla av ensamhet framträdde. De anhöriga upplevde att de hade ett större behov av stöd än vad de erhölls. Ett personcentrerat förhållningssätt i omvårdnaden innebär att sjuksköterskan kan stötta och se vilka behov de anhöriga har. När de anhöriga får det stöd de behöver kan det öka tryggheten och denna trygghet kan förbättra relationen mellan sjuksköterska och anhörig. Denna trygghet är viktig när sjuksköterskan ska tillmötesgå de anhörigas behov.
174

Anhörigas upplevelse av att vårda en familjemedlem med Alzheimers sjukdom : En litteraturstudie

Carlsson, Michaela, Holst, Erica January 2018 (has links)
Bakgrund: Förekomsten av Alzheimers sjukdom fortsätter att öka i världen. Varje år insjuknar ca 25 000 personer i Alzheimers sjukdom. I Sverige har ca 100 000 personer sjukdomen och i hela världen ca 20 miljoner. Personer med Alzheimers sjukdom kan bo hemma längre än tidigare eftersom fler anhöriga tar den vårdande rollen vilket kan innebära förändringar i vardagen för både anhöriga och familjemedlemmar.                   Syfte: Syftet var att beskriva anhörigas upplevelse av att vårda en familjemedlem med Alzheimers sjukdom.                                                                                                          Metod: En litteraturstudie med kvalitativ ansats baserad på åtta vetenskapliga artiklar från Cinahl och Pubmed. Artiklarna analyserades med hjälp av Graneheim och Lundmans analysmetod. Resultat: Resultatet bestod av en kategori och sju underkategorier. Kunskap var av stor betydelse och förbättrade vårdandet av familjemedlemmen. Ofta utrycktes bristfällig kunskap hos anhöriga och mer kunskap önskades vilket inte alltid var lätt att få. Relationen mellan familjemedlemmar och anhöriga var något som ofta påverkades. Anhöriga fick ta ett stort ansvar och upplevde det jobbigt att vårda familjemedlemmen. Ombytta roller var något som ofta förekom i vårdandet, anhöriga fick överta sysslor som familjemedlemmen inte längre klarade av. Anhöriga försökte bibehålla närhet och kärlek i relationen till familjemedlemmen men gick ofta miste om mycket eftersom vårdandet tog upp hela anhörigas liv. Emotioner som rädsla, oro, skuld, sorg och glädje var känslor som anhöriga ofta kände och känslor av att inte orka mer var något som ofta förekom hos anhöriga i vårdandet av familjemedlemmen.                                                                                     Slutsats: Alzheimers sjukdom påverkar anhöriga i många aspekter. Anhöriga kan uppleva glädje, sorg, skuld, rädsla och oro. Kunskap ansågs vara en betydande del för hur anhöriga upplevde vårdandet. Relationen påverkas genom att familjemedlemmen förändras.
175

Närståendes upplevelser : I vårdandet av familjemedlemmar med Alzheimers sjukdom En litteraturöversikt / Relatives’ experiences : In caring for family members with Alzheimer's disease A literature review

El-Tai Abdel-Rehim, Aisha, Thörn, Erik January 2018 (has links)
Bakgrund: Enligt WHO drabbas ungefär tio miljoner människor av demens varje år varav 60 till 70 procent av Alzheimers sjukdom. I Sverige är upp emot var femte vuxen en regelbunden informell vårdgivare till någon i sin omgivning. Informell vård innebär den omsorg som närstående ger till vårdtagaren. Behovet av närståendes närhet ökar ofta under insjuknandet i Alzheimers sjukdom. Sjuksköterskan har en hälsofrämjande och sjukdomsförebyggande funktion och har en roll som rådgivare där denne vägleder vårdtagare och deras närstående. Syfte: Syftet var att belysa närståendes upplevelser kring vårdandet av familjemedlemmar med Alzheimers sjukdom. Metod: En litteraturöversikt genomfördes där tio artiklar med kvalitativ design granskades och analyserades enligt Friberg. Dessa artiklar framkom ur databaserna Cinahl Complete, Pubmed, Medline och PsykINFO. Sökord som användes var ”Alzheimers disease”, ”experience”, ”relatives” och ”family”. Resultat: Fyra huvudteman konstruerades. Transitionen från närstående till att bli vårdgivare, här framkom det att närstående upplevde maktlöshet, tvivel och en förlust av autonomi. Älta det förflutna och känna oro för framtiden, närstående upplevde en känsla av oro inför framtiden både för vårdtagaren och dem själva. Upplevelsen av stigmatisering och isolering, närstående upplevde att de blev isolerade och kände av en stigmatisering i samhället. Att förlora samhörigheten och stärka den, närstående belyste att relationen med vårdtagaren förändrades till följd av sjukdomens inverkan.  Diskussion: Resultatet diskuterades utifrån Callista Roys teori om adaption. Diskussionen fördes kring hur upplevelserna hos närstående kan förstås utifrån denna teori och det som framkom i resultatet. Närstående genomgår en övergång till att bli en vårdgivare och befinner sig i en föränderlig miljö där adaption eftersträvas för att finna en balans i livet. En diskussion fördes kring sjuksköterskans roll i samspelet med närstående. / Background: According to WHO, approximately ten million people are affected by dementia each year, of which 60 to 70 percent are suffering from Alzheimer's disease. In Sweden, every fifth adult is an informal caregiver to someone in their environment. Informal care involves the care that relatives give to their care recipient. At the onset of Alzheimer's disease, the need of closeness to the relatives often increases. The nurse has a health promoting and disease preventing function and has a role as an adviser in which he/she guides the care recipient and their relatives. Aim: The aim was to illustrate the experiences of relatives in caring for family members with Alzheimer´s Disease.  Method: A literature review was conducted where ten articles of qualitative design were examined and analyzed according to Friberg. These articles came from the databases Cinahl Complete, Pubmed, Medline and PsychInFO. Keywords used were "Alzheimers Disease", "Experience," "Relatives," and "Family." Results: Four main themes were constructed. The transition from relative to becoming a caregiver, here it emerged that relatives experienced powerlessness, doubt and a loss of autonomy. Dwelling on the past and Feeling worried about the future, relatives experienced a sense of concern for the future both for the care recipient and for themselves. The experience of stigmatization and isolation, relatives felt that they were isolated and felt stigma in society. The loss of togetherness and strengthen it, relatives explained that the relationship with the care recipient changed as a result of the effect of the disease.  Discussion: The results was discussed based on Callista Roys theory of adaptation. The discussion was conducted in relation to how the experiences of relatives can be understood based on this theory, and other findings that emerged from the results. Relatives undergo a transition to becoming a caregiver and are in a changing environment where adaptation is sought to find a balance in life. A discussion was held about the nurse's role in the interaction with relatives.
176

Uttryck och skattning av smärta hos personer med Alzheimers sjukdom : En litteraturstudie / Expressions and valuation of pain in people with Alzheimer´s Disease

Suoraniemi, Dennis, Carlsson, Hampus January 2018 (has links)
Bakgrund: Alzheimers är en långsam progressiv sjukdom och är den vanligaste demenssjukdomen. Sjukdomen innebär försämrat närminne och begränsar kommunikationsförmågan. Hur smärta uttrycks i jämförelse med friska personer i samma ålder är oklart. Syfte: Syftet var att belysa hur personer med Alzheimers sjukdom uttrycker sin smärta. Metod: Arbetet var en litteraturöversikt med systematiska sökningar som gjordes i tre databaser. Resultat: Denna litteraturstudie belyste tre olika kategorier: Variation av uttalad smärtintensitet, manifestation av smärta och skattning av smärta. Slutsats: Det som framträdde var att hur personer med Alzheimers sjukdom uttryckte sin smärta inte gick att generalisera, smärta upplevdes olika för varje individ. Observerande skalor var att föredra framför självskattningsskalor vid bedömning av smärta hos personer med Alzheimers sjukdom. / Alzheimer disease is a slow progressive disease that is the most common type of dementia. The disease cause deterioration of cache and limit the ability to communicate. How pain is expressed in comparison to healthy people of the same age is unclear. Aim: The purpose was to highlight how people with Alzheimer's disease expressed their pain. Result: This literature study has highlighted three different categories: The variation of pain intensity, manifestation of pain and estimation of pain. Conclusion: What emerged was how people with Alzheimer's disease expressed their pain could not be generalized, pain was different for each individual. Observing scales was preferable to self-assessment scales for pain assessment in people with Alzheimer's disease.
177

Närståendes upplevelser vid vårdande av en familjemedlem med Alzheimers sjukdom : En litteraturöversikt / Next of kin’s experiences caring for a family member with Alzheimer’s disease : A literature review

Suubi, Marie January 2018 (has links)
Bakgrund: Alzheimers sjukdom är en demenssjukdom som främst drabbar äldre men kan även förekomma bland yngre individer. Sjukdomen medför begränsningar så att patienten bland annat får svårigheter att hitta i sin omgivning eller känna igen tidigare bekanta saker. Närstående är därför betydelsefulla i vårdande av den drabbade. Ju mer vårdbehovet ökar, desto mer påverkas närstående socialt, fysiskt och psykiskt då de har ett stort ansvar i vårdande och det påverkar deras hälsa negativt. Det är därför viktig att vårdpersonal erbjuder dem det stöd de behöver i vårdandet. Syfte: Att beskriva närståendes upplevelser av att vårda en familjemedlem som drabbats av Alzheimers sjukdom. Metod: En litteraturöversikt grundad på nio kvalitativa studier som hittades i databaserna: CINAHL, PubMed och Ageline. Studierna söktes fram samt analyserades och gemensamma teman identifierades.  Resultat: Fem huvudteman identifierades: att få diagnos, varierande känslor behov av kunskap och stöd, rollförändringar, och redskap i vårdande. Diskussion: Närståendes upplevelser var både positiva och negativa. Resultatet diskuteras utifrån Roys adaptionsteori med ”individen” i fokus. En bättre förståelse av närståendes upplevelser i vårdande av personer med Alzheimers sjukdom både i samhället och hos vårdpersonal kan underlätta vårdande för familjemedlem och främja hälsa hos närstående. För att förebygga ohälsa och främjar livsvillkor krävs det stöd till både närstående och patienter. Mer forskning samt kontinuerliga utbildningar om närståendes upplevelser i vårdande av en person med Alzheimers sjukdom behövs. / Background: Alzheimer's disease is a dementia that primarily affects elderly but may occur among younger people too. The disease causes severe memory loss so that the patient, among other things, has difficulty finding out in his surroundings or recognizing previously familiar things. The next of kin are therefore important in caring for the sick person. As the need for care increases, the more it affects the next of kin socially, physically and mentally, because they have a major responsibility/role in caring and it can negatively affect their health. It is therefore important that healthcare professionals provide them with the support they need in caregiving. Aim: To describe next of kin’s experiences of caring for a family member affected by Alzheimer's disease. Method: A literature review based on nine qualitative studies found in the databases: CINAHL, PubMed and Ageline. The studies were searched, analyzed, and the common themes identified. Results: Five main themes were identified: to get a diagnosis, the varying feelings, need of knowledge and support, role changes, and tools in caregiving. Discussion: Next of kin’s experiences were both positive and negative. The results are discussed based on Roys adaptation theory with the “individual” in focus. A better understanding of the next of kin’s experience in caring for a person with Alzheimer's disease both in society and healthcare professionals can facilitate care for a family member and promote the health of their next of kin. To prevent ill health and promote good living conditions, support is required for both next of kin and his/her family member. More research as well as good and continuous education about the next of kin’s experiences in caring for a person with Alzheimer’s disease is needed.
178

A avaliação do efeito de um programa multiprofissional de estimulação cognitiva e funcional em pacientes portadores de doença de Alzheimer leve e moderada / on of the effects of a multiprofessional cognitive and functional stimulation program for patients with mild and moderate Alzheimers disease

Luciane de Fátima Viola 16 March 2010 (has links)
A doença de Alzheimer (DA) é uma doença crônica neurodegenerativa que representa a causa mais comum de demência em idosos. A progressão dos déficits cognitivos e funcionais na DA leva à dependência e está associado à significativa sobrecarga do cuidador. Atualmente os tratamentos disponíveis visam aliviar a perda cognitiva e funcional, além dos sintomas comportamentais que possam ocorrer no curso da doença. O objetivo do presente estudo é avaliar o efeito de um programa multiprofissional de estimulação cognitiva e funcional para pacientes com DA leve e moderada, realizado no Centro de Reabilitação e Hospital Dia do Instituto de Psiquiatria do Hospital das Clínicas da Faculdade de Medicina da Universidade de São Paulo. O grupo controle (GC) foi constituído por pacientes com DA que não receberam intervenção. Ambos os grupos estavam em tratamento ambulatorial regular e com a medicação antidemencia estável. Pacientes e controles foram avaliados antes e após a intervenção por dois avaliadores que estavam cegos para os grupos de tratamento. A intervenção durou 15 semanas, com dois encontros semanais com duração de 6 horas (um total de aproximadamente 180 horas). As medidas de avaliação adotadas foram alterações cognitivas, funcionais, de humor e qualidade de vida. A bateria de avaliação constituiu em: Teste Breve de Performance Cognitiva (SKT), Miniexame do Estado Mental (MEEM), Avaliação Direta do Estado Funcional (DAFS), Escala de Depressão Geriátrica (GDS), Inventário Neuropsiquiátrico (NPI), Qualidade de Vida nas Demências (QdV-DA), e pela Impressão Clinica baseada em Mudanças (CIBIC-Plus). Os resultados mostraram que, enquanto o grupo que recebeu intervenção permaneceu estável, o grupo controle apresentou um leve, mas significativo, declínio indicado pela pontuação total do SKT (p=0,05) e pelo subitem atenção do SKT (p=0,01). Não foram observadas diferenças significativas no desempenho funcional (DAFS) e sintomas neuropsiquiátricos (NPI), independentemente dos grupos de tratamento. Os pacientes do grupo de intervenção apresentaram melhora nos sintomas depressivos (p=0,002) e de qualidade de vida (p=0,01). Quanto ao CIBIC-Plus, tanto o paciente como o informante indicaram uma melhora significativa na memória (p=0,01 e p=0,05, respectivamente), da capacidade de orientação (p=0,05) segundo a avaliação do paciente, e os informantes também referem melhora da praxia e do sono dos pacientes (p=0,05 e p=0,03, respectivamente). Em suma, há evidências de que o programa atual de estimulação cognitiva e funcional pode render benefícios relevantes para os pacientes com DA. As medidas mais sensíveis foram a impressão clínica global de mudanças na memória, orientação, sono e praxia, além da melhora na qualidade de vida e nos sintomas depressivos. / Alzheimer\'s disease (AD) is a chronic neurodegenerative disease that represents the most prevalent cause of dementia in older adults. The progression of cognitive and functional deficits in AD leads to dependence and is associated with significant caregiver burden. Currently available treatments aim to alleviate cognitive and functional loss, in addition to behavioral symptoms that are expected to occur in the course of the disease. The objective of the present study is to evaluate the effect of a multiprofessional cognitive and functional stimulation program for patients with mild and moderate AD. The study was conducted at the Rehabilitation Center and Day Hospital, Institute of Psychiatry, Hospital das Clínicas, Faculty of Medicine, University of Sao Paulo. The control group consists in a subset of patients with AD to whom no such intervention was provided. Both groups have received regular outpatient treatment and were stably medicated with antidementia drugs. Patients and controls were evaluated before and after the intervention by two raters who were blinded to treatment groups. The intervention took 15 weeks, with two six hours weekly meeting (a total of approximately 180 hours). Outcome measures were modifications in cognitive, functional, mood and quality of life ratings. The assessment consisted in: Short Test of Cognitive Performance (SKT), Mini-Mental State Examination (MMSE), Direct Assessment of Functional Status (DAFS), Geriatric Depression Scale (GDS), Neuropsychiatric Inventory (NPI) - caregiver subscale, Quality of Life in Dementia (QoL-AD), and Clinicians Interview Based Impression of Change (CIBIC-Plus). Results: whereas patients in the intervention group remained cognitively stable, patients in the control group displayed a mild but significant decline, as indicated by the total SKT score (p=0.05) and the attention STK subscore (p=0.01). No significant differences were observed in functional performance (DAFS) and neuropsychiatry symptoms (NPI), irrespective of treatment groups. Patients in the intervention group displayed improvement in depressive symptoms (p=0.002) and quality of life measures (p=0.01). As for the CIBIC-Plus, both patient- and informant-based questionnaires indicated a significant improvement in memory (p=0.01 and p=0.05, respectively), in addiction to a significant improvement in the patient-based assessment of orientation (p=0.05), and in the informant-based assessment of sleep and praxis (p=0.05 and p=0.03 respectively). In conclusion, evidences were provided that the present program of cognitive and functional stimulation may yield mild but relevant benefits for patients with AD. Global impressions of change in memory, orientation, sleep and praxis, in addition to improvement in quality of life and depressive symptoms, were the most sensitive measurements in the present schedule.
179

A jornada do cuidar: experiência de cuidadoras familiares de idosos com demência de Alzheimer / The journey of care: the experience of family caregivers of older adults with Alzheimers dementia

Emanuela Bezerra Torres Mattos 15 September 2016 (has links)
Com o crescente envelhecimento populacional, as síndromes demenciais têm tido alta prevalência na população idosa acima dos 60 anos. Em todo o mundo, a ausência de uma rede de suporte formal adequada traz a responsabilidade ao cuidador familiar que passa a exercer essa função que pode durar longos períodos. A presente pesquisa tem como objetivo compreender a experiência da cuidadora familiar de idoso com a doença de Alzheimer ao longo do processo de cuidar, conhecer sobre os aspectos positivos e/ou negativos desse cuidar e identificar necessidades próprias e/ou particulares das cuidadoras de idosos com esse tipo de demência. Trata-se de uma pesquisa de natureza qualitativa. Foram entrevistadas 9 cuidadoras familiares (04 esposas e 05 filhas). Os princípios éticos de sigilo, privacidade, confidencialidade, não identificação dos dados das colaboradoras e liberdade de participação foram respeitados. Os depoimentos foram gravados a partir da entrevista aberta com a seguinte questão norteadora: Como é para você a experiência de acompanhar e cuidar de seu marido (pai ou mãe, irmã (o)) com demência de Alzheimer? As unidades de significado emergiram tendo como fundamento o método fenomenológico proposto por Giorgi e Sousa (2010). A reflexão a respeito das 19 unidades de temáticas desveladas como os principais temas de análises dos nove depoimentos de cuidadoras familiares foram relacionadas às três fases no longo processo do adoecimento: 1. Início que é marcado pela percepção de alguns sintomas, a demora no diagnóstico, a peregrinação por médicos, a oscilação de sentimentos, da negação à impotência, as mudanças na rotina, o medo do desconhecido e do futuro, tentativa de minimizar ou normalizar o problema e o impacto inicial do diagnóstico na vida do doente e da cuidadora principal; 2. O processo da jornada em que se observa a sobrecarga do cuidado, a diminuição da participação social, o sentimento de impotência, a proximidade com o Ser Superior, a percepção de morte em vida, a busca por suporte e apoio, a tentativa de estagnar a evolução da doença, a necessidade de reorganizar a rotina e de ressignificar a experiência vivida, a percepção sobre aspectos positivos do cuidar como forma de fortalecer a sensação de bem-estar e modificar a maneira de olhar o processo de adoecimento de seu ente querido; 3. O processo final da jornada que é percebido como solitário, doloroso e sofrido, com muitas dúvidas, medos e estigmas, a falta de acolhimento e o silencio de profissionais. A partir da análise dos principais temas observados buscou-se ampliar a compreensão de que a jornada do cuidar não é finalizada com a morte do ente querido devido à necessidade da elaboração, ressignificação e retomada da vida após a perda, abrindo espaço para discussão, reflexão e mudanças para todos aqueles envolvidos nesse processo. São apresentadas também recomendações para cuidadores familiares e profissionais de saúde nos cuidados às pessoas com Doença de Alzheimer / With the growing aging population, dementia syndromes have had high prevalence in the elderly over 60 years. Worldwide, the absence of adequate formal support network brings responsibility to family caregiver who comes to perform this function that can last long periods. This research aims to understand the experience of elderly family caregivers with Alzheimer\'s disease throughout the care process, know about the positive and negative factors of that care and identify particular needs of caregivers of elderly with dementia. This is a qualitative research. Nine family caregivers were interviewed (04 wives and 05 daughters). The ethical principles of confidentiality, privacy, confidentiality, no identifying data and freedom of participation were respected. The statements were recorded from an open interview with the following question: \"How is it for you the experience of caring of your husband (father or mother, sister) with Alzheimer\'s dementia\"? The units of meaning emerged taking as a basis the phenomenological method proposed by Giorgi and Sousa (2010). The reflection on the 19 thematic units unveiled as the main themes of analysis of the nine testimonies of family caregivers were related to three stages in the long process of becoming ill: 1. The beginning which is marked by the perception of some symptoms, delay in diagnosis, the pilgrimage by doctors, the oscillation of feelings, from denial to helplessness, changes in routine, fear of the unknown and the future, try to minimize or normalize the problem and the initial impact of the diagnosis in the life of the patient and the primary caregiver;2. The journey of process where there is the burden of care, decreased social participation, the feeling of helplessness, the proximity with a superior being, the perception of death in life, the search for support, the attempt to stalling the progress of the disease, the need to reorganize the routine and give new meaning to lived experience, the perception of positive aspects of caring as a way to strengthen the sense of well-being and change the way of looking at the disease process of their loved one ; 3. The final process of the journey that is perceived as lonely, painful and suffered, with many doubts, fears and stigmas, lack of support and the silence of professionals. From the analysis of the main issues observed sought to broaden the understanding that the journey of care is not finished with the death of loved one due to the need of reframing and resumption of life after loss, making room for discussion, reflection and changes for all those involved in this process. Recommendations of caring people with Alzheimer\'s disease for family caregivers and health professionals are also shown in this study
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Comparação das habilidades de comunicação na depressão de início tardio e doença de Alzheimer / Comparison of communication abilities in late onset depression and Alzheimers disease

Tania Maria da Silva Novaretti 27 March 2009 (has links)
I NTRODUÇÃO: Depressão e demência são os transtornos neuropsiquiátricos de maior prevalência na população idosa. Déficit na comunicação lingüística é um sintoma inerente à Doença de Alzheimer (DA). Prejuízos na linguagem podem ser encontrados, também, em pacientes deprimidos. A Bateria Arizona para Desordens da Comunicação em Demência (ABCD) é um instrumento clínico desenhado para identificar e quantificar os déficits funcionais de comunicação lingüística associados à demência e proporciona informações sobre outras funções cognitivas, como orientação, memória episódica, e habilidades visuoespaciais. OBJETIVOS: O propósito deste estudo é verificar o desempenho de idosos sadios, pacientes deprimidos e pacientes portadores de DA em fase inicial e comparar os perfis das habilidades de comunicação nesses grupos. MÉTODOS: Foram estudados 25 pacientes com depressão de início tardio, (idade média 73.6 (6.6); escolaridade: 9.1 (5.7)) e 30 pacientes com DA leve (CDR=1), (idade média 77.6 (5,4); escolaridade: 7.5 (7,1)) utilizando-se a ABCD. O desempenho de ambos os grupos foi também comparado a um grupo controle de 30 idosos sadios (idade média 73.8 (5.8); escolaridade: 9.1 (5.4)). CONCLUSÕES: Pacientes portadores de DA em fase inicial tiveram pior desempenho que controles e deprimidos, em todos os testes. Pacientes deprimidos tiveram escores intermediários entre controles e DA em todas as tarefas, e desempenho significativamente pior que os controles em Expressão lingüística e no total da ABCD / INTRODUCTION: Depression and dementia are very prevalent in the elderly. An inherent component of AD is impairment in linguistic communication. Language impairment can also be found in depressed patients. The Arizona Battery for Communication Disorders of Dementia (ABCD) is a clinical instrument designed to identify and quantify functional linguistic communication deficits in dementia and also provides information about other cognitive functions, as orientation, memory, and visuospatial abilities. OBJECTIVES: The aim of this study was to verify the performance of healthy elderly, depressed elderly and mild AD patients and to compare the profiles of communication abilities in these groups. METHODS: We studied 25 patients with late onset depression (mean age 73, 6 (6.6); schooling: 9.1 (5,7)) and 30 patients with mild (CDR=1) AD (mean age 77.6 (5.4); schooling: 7,5 (7.1)) using the ABCD. The performance of both groups was also compared to a control group of 30 healthy subjects (mean age 73.8 (5.8); schooling: 9, 1 (5.4)). CONCLUSIONS: Mild AD patients showed worse performance than normal subjects in all tasks, while depressed patients had scores that were intermediary to that of controls and AD in most tasks. Depressed patients performed significantly worse than normal subjects in Linguistic Expression and in ABCD total score

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