McMaster University DOCTOR OF PHILOSOPHY (2019) Hamilton, Ontario (Health Research Methods, Evidence, and Impact) TITLE: Measuring International Health Inequalities and Socioeconomic Status Using Household Survey Data AUTHOR: Mathieu J.P. Poirier, B.Sc., M.P.H. (McMaster University) SUPERVISOR: Dr. Michel Grignon NUMBER OF PAGES: xii, 231 / The methods underlying the quantification of health inequalities have profound consequences for measuring progress in achieving health for all. In Chapter two, associations between household wealth indices, income, and consumption were systematically compiled and different methods of wealth index calculation were evaluated for appropriateness of use in a variety of settings. Researchers are presented with a synthesis of existing evidence about the appropriateness of use of wealth indices in urban and rural areas, their robustness to changes in the asset mix, future applications, and advantages and disadvantages of primary competing methods of quantifying SES using household survey data. In Chapter three, international microdata were analyzed to evaluate how magnitudes of health inequality are affected by different methods of quantifying household socioeconomic status (SES), including income, consumption, and asset wealth. In Chapter four, the need for a transnational approach to measuring health inequalities was justified and the new method was developed using an empirical example. Substantively, these chapters develop the most complete evaluation of the association between the asset wealth, consumption, and income using both critical interpretive synthesis and microdata analysis, as well as the first meta-analysis evaluating changes in health inequality magnitudes according to the SES measure used over time and across country-income levels. The transnational analysis of health inequalities uncovered previously hidden health disparities in the island of Hispaniola, and detailed instructions for all methodological aspects of the new method were presented. The distribution of disease between nations, subnational regions, and urban-rural areas in Hispaniola were analyzed from 1994 to 2013, and the first relative geospatial wealth ranking between Haiti and the Dominican Republic was presented. Global health researchers should strive to measure the equity of health between people, and this sometimes requires analyzing populations that are not neatly contained by national boundaries. / Thesis / Doctor of Philosophy (PhD) / This thesis investigates social inequalities in health and how to measure socioeconomic status (SES) using household surveys in a way that is robust across jurisdictions. It examines how wealth indices compare to income and consumption, and develops a new method to calculate transnational health inequalities. Chapter two conducts a comprehensive evaluation of evidence surrounding the use of wealth indices in urban and rural areas, robustness to changes in assets, future applications, and the advantages and disadvantages of the primary competing methods for quantifying household SES. The third chapter systematically evaluates how health inequality magnitudes evolve over time and across country-incomes according to SES measure. Finally, a transnational measurement of health inequalities was calculated for the island of Hispaniola in chapter four, uncovering the distribution of disease between nations, subnational regions, and urban-rural areas. Detailed instructions for all methodological aspects of the new transnational method are presented.

Utilizing a mixed methods approach in assessing cities and metropolitan areas with the highest rates of breast cancer disparities in African-American communities, this study presents the Affiliate perspective of the Susan G. Komen non-profit organization in combination with available socioeconomic data and academic literature. Analyzed through an anthropological lens, qualitative and quantitative data illuminate the lived experiences and dynamic circumstances in which breast cancer disparities are disproportionately experienced in 21 of the nation’s populations of African-Americans. Two main recommendations arose from this research: prioritization of granting to activities such as patient navigation, usage of patient narrative messaging, community-based participatory research methods of program development and implementation, mobile mammography delivery, usage of lay health educators, and self-advocacy education to alleviate barriers to healthcare and supplementation of the current educational activities of the Komen Affiliates through program sharing and leverage of current assets with consideration of current Affiliate capacity. These recommendations may help in alleviating breast cancer disparities present in African-American communities with the highest levels of disparities in the nation.

Introduction : Les droits en matière de santé sexuelle et reproductive (SSR) sont essentiels pour parvenir à une couverture sanitaire universelle pour tous, y compris les personnes handicapées. L'Ouganda a émergé d'un conflit armé de 20 ans qui a engendré à la fois des handicaps et des dommages aux systèmes de santé, en particulier au nord du pays. Une personne sur cinq vit avec un handicap en Ouganda où plusieurs lois et politiques ont été adoptées promouvant les droits des personnes handicapées. Or, leur accès aux services de SSR demeure limité. Les rôles genrés restent omniprésents et les hommes et les jeunes handicapés sont moins ciblés par les programmes de SSR (article 1). Les politiques de santé et leur mise en œuvre nécessitent donc une analyse contextuelle plus approfondie pour protéger le droit à la santé des personnes handicapées. Cette thèse visait à examiner les relations perçues et empiriques entre la législation, les politiques de santé et l'utilisation des services de SSR par les personnes handicapées dans la région post-conflit au nord l'Ouganda. Méthodes : Un devis séquentiel exploratoire de méthodes mixtes s'est appuyé sur le cadre d’analyse des politiques basée sur l'intersectionnalité (IBPA). 1) Nous avons mené une étude de cas multiples auprès de cinq groupes d'acteurs des politiques (personnes handicapées, prestataires de services, organisations de personnes handicapées, organisations nationales et internationales, et décideurs politiques nationaux), thématiquement analysé 45 entretiens approfondis et neuf groupes de discussion, et observé sept structures de santé en matière d'accessibilité. 2) Nous avons analysé des données secondaires provenant des enquêtes démographiques et sanitaires ougandaises de 2006, 2011 et 2016 à l'aide de régressions logistiques multivariées. Le but était d’analyser l'utilisation des services de SSR chez 15 739 personnes au cours de la décennie qui a suivi l'adoption de la Loi sur le handicap en Ouganda. 3) Une revue systématique a été réalisée pour examiner les relations entre la législation, les politiques de santé et l'utilisation des services de SSR parmi les populations vulnérables en Afrique subsaharienne (1994-2019). Résultats : Cette thèse met en exergue quatre résultats principaux. 1) Le cadre de l’IBPA a mis en évidence des relations complexes entre la législation, les politiques de santé et l'utilisation des services de SSR chez les personnes handicapées au nord de l'Ouganda. Ces relations ont été marquées par des défis de mise en œuvre des politiques, la violation des droits des personnes handicapées, et des vulnérabilités croisées vécues par les personnes handicapées, exacerbées par les structures de pouvoir sociétales sous-jacentes. Les perceptions des différents groupes d'acteurs des politiques convergeaient en soulignant les iniquités persistantes en matière de SSR auxquelles sont confrontées les personnes handicapées (articles 2 et 3). L'utilisation des services de SSR s’est accrue au fil du temps. Cependant, elle ne s'est pas améliorée de la même manière pour tous. L'évolution de l'utilisation des services de SSR sur une décennie a révélé des tendances d’utilisation des services nuancées chez les personnes vivant avec différentes incapacités; notamment, les femmes plus nanties avec une incapacité auditive étaient moins susceptibles d'avoir utilisé les services de maternité comparativement aux femmes pauvres non handicapées (article 4). 2) Les cinq groupes d’acteurs des politiques ont identifié des défis en matière de mise en œuvre des politiques et ont émis plusieurs recommandations concrètes et complémentaires pour lever les barrières et rendre opérationnelles les mesures transformatrices, telles que la budgétisation et la collecte de données sur le handicap (articles 2 et 3). 3) Les résultats au niveau local (Ouganda) ont permis de contextualiser ceux au niveau régional (Afrique subsaharienne), et vice versa. Une revue systématique sur une période de 25 ans a montré que les personnes handicapées restent dans l’angle mort de la recherche sur l'analyse des politiques en matière d’utilisation des services SSR (article 5). 4) La pratique de la réflexivité tout au long de la recherche a mis en lumière les tensions dans l'application des normes éthiques dans le contexte de la recherche qualitative en santé mondiale avec des personnes handicapées menée dans le Sud (article 6). Conclusion : Ces résultats permettent aux acteurs des politiques à différents niveaux d'agir – maintenant – pour aborder et corriger les iniquités sociales de santé vécues par les personnes handicapées. Le cadre de l'IBPA s'est avéré un outil analytique et théorique utile pour mieux comprendre les questions complexes liées aux politiques et aux vulnérabilités intersectionnelles auxquelles font face les personnes handicapées. Ce cadre pourrait enrichir d’autres cadres existants d’analyse des politiques. La thèse propose deux adaptations théoriques, soit le cadre du IBPA combiné au « Multiple Streams Framework» de Kingdon et au « Policy Triangle Model» de Walt et Gilson pour de futures recherches en santé mondiale sensibles au handicap et axées sur l'analyse des politiques basées sur l'équité. / Introduction: Sexual and reproductive health (SRH) rights are essential to achieve universal health coverage (UHC) for all, including people with disabilities. Uganda emerged from a 20-year armed conflict which created both disability and damage to health systems, especially in the Northern region. One Ugandan in five lives with some disability. Uganda adopted a series of normative tools promoting the rights of people with disabilities. However, their access to SRH services remains limited. More broadly, ableist gendered roles remain pervasive and men and youth with disabilities are less targeted by SRH programmes (Article 1). Health policies and their implementation need deeper contextualised analysis to protect the right to health of people with disabilities. This thesis aimed to examine the perceived and empirical relationships among legislation, health policies, and SRH service utilisation among people with disabilities in post-conflict Northern Uganda. Methods: A sequential exploratory mixed methods design was informed by the Intersectionality-based Policy Analysis (IPBA) framework. First, I conducted a multiple case study with five groups of policy actors (people with disabilities, service providers, disabled people’s organisations, national and international organisations, and national policy-makers). I thematically analysed 45 in-depth interviews and nine focus groups and observed seven health facilities regarding accessibility. Second, I analysed secondary data with multivariable logistic regressions, from the 2006, 2011, and 2016 Uganda Demographic and Health Surveys regarding SRH service use among 15,739 individuals in the decade following the adoption of national legislation promoting the rights of people with disabilities. Third, I conducted a systematic review examining the relationships among legislation, health policies, and SRH service use among vulnerable populations in sub-Saharan Africa (1994-2019). Results: This thesis highlights four main findings. First, the IBPA framework revealed complex relationships among legislation, health policy, and the use of SRH services by people with disabilities in Northern Uganda. These relationships were marked by policy implementation challenges, disability rights violation through multiple barriers to access, and intersecting vulnerabilities experienced by people with disabilities, exacerbated by underlying societal power structures. On one hand, the perceptions of different groups of policy actors converged by emphasising the ongoing SRH inequities faced by people with disabilities (Articles 2 and 3). On the other hand, although SRH service use improved over time, it did not improve equally for everyone. The 10-year SRH service use trend showed nuanced patterns across people with different impairments; notably, richer women with hearing impairments were less likely than poor non-disabled women to have used safe motherhood services (Article 4). Second, despite identifying legislation and policy implementation challenges, the five groups of policy actors suggested several concrete and complementary recommendations to address barriers and operationalise transformative measures, such as disability data collection and budgeting (Articles 2 and 3). Third, research findings at the local level (Uganda) contextualised the findings at the regional level (sub-Saharan Africa), and vice versa. A 25-year systematic review showed that people with disabilities continue to be a blind spot in research on SRH service use and policy analysis (Article 5). Finally, the practice of reflexivity throughout the research revealed tensions in the application of ethics norms in the context of global health qualitative research with people with disabilities conducted in the Global South (Article 6). Conclusion: The IPBA framework proved to be a useful and transformation-oriented analytical tool to disentangle complex policy implementation issues and multiple intersecting vulnerabilities and barriers to SRH service access and utilisation by people with disabilities. This thesis proposes two adapted conceptual frameworks for future disability-sensitive research focusing on equity-focused policy analysis in global health, integrating IBPA with Kingdon’s Policy Streams framework to enhance sensitivity to equity and Walt and Gilson’s Policy Triangle model to enhance sensitivity to the multiple dimensions of (in)equity. The Sustainable Development Goals emphasise inclusiveness and accountability. UHC for all is only possible through transformative action and research to fill knowledge and programmatic gaps, focusing on equity and human and disability rights. This thesis provides evidence enabling policy actors at different levels to act – now – to address and redress the social health inequities experienced by people with disabilities.

Introduction: La justice sociale, l’empathie et la responsabilité sociale sont des thèmes émergents en médecine dentaire. Plusieurs facultés de médecine dentaire ont commencé à incorporer ces concepts dans leur curriculum, mais nos connaissances sur l’efficacité de ces initiatives sont limitées. L’objectif de cette étude était de comprendre comment les étudiants et enseignants perçoivent l’enseignement de la justice sociale en médecine dentaire au premier cycle. Méthodes : Nous avons effectué une recherche qualitative en utilisant des entretiens semi- dirigés avec des étudiants, professeurs et cliniciens de la Faculté de médecine dentaire de l’Université de Montréal. Nous avons recruté 18 participants en utilisant un échantillonnage déterministe jusqu’à saturation. Les entrevues ont été enregistrées et retranscrites intégralement. Elles ont ensuite été codées avec le logiciel QDA Miner 5.0 (Provalis 2016). Une analyse thématique a été entreprise pour dégager les thèmes émergents en utilisant une méthodologie qualitative. Résultats : Cinq thèmes ont émergé des résultats. Certains étudiants étaient plus enclins à s’intéresser à la justice sociale et à participer aux activités communautaires facultatives. L’enseignement actuel comporte des lacunes incluant un manque d’exposition à certains plans de traitements alternatifs. Certaines barrières à l’enseignement ont été identifiées, le plus important étant un manque de temps dans le curriculum. L’enseignement souhaité de la justice sociale inclurait une prise de conscience accrue et une participation active des étudiants, une prise de responsabilité pour motiver l’action et produire un changement. L’application de la justice sociale en médecine dentaire se traduit par des soins accessibles et adaptés au patient. Conclusion: Les résultats de cette étude fournissent des pistes de réflexion pour le développement d’un curriculum de justice sociale qui pourra être évalué et validé, dans le but de former des dentistes socialement compétents qui prodigueront des soins axés sur le patient. / Introduction : Social justice, empathy and social responsibility are emerging themes in dentistry. Many dental faculties have started incorporating these concepts in their curriculum, but our knowledge of the effectiveness of these initiatives is limited. The objective of this study was to understand how students and educators perceive social justice education in the undergraduate dentistry program. Methods : We performed qualitative research using semi-structured interviews with students, professors and clinical faculty at the Université de Montréal dental school. We recruited 18 participants using purposeful sampling until saturation. The interviews were recorded and transcribed integrally. They were coded using QDA Miner 5.0 (Provalis 2016). Thematic analysis was undertaken to elucidate emerging themes using qualitative methodology. Results : Five themes emerged from the results. Certain students were more inclined to be interested in social justice and participate in voluntary community-based activities. There were gaps in current teaching methods including a lack of exposure to certain alternative treatment plans. Some barriers to teaching were identified, the most important being a lack of time. Desired teaching of social justice would include increased awareness and active student participation, and taking responsibility to motivate action to produce social change. The application of social justice in dentistry involves accessible and adapted care for patients. Conclusion : The results of this study provide insight for the development of a social justice education curriculum in dentistry that can be evaluated and validated in order to form socially competent dentists who can provide patient-centered care to the community.

<p>  </p> <p>Food insecurity describes the lack of access to foods and affects 10.2% of general U.S. households and 27% of low-income households in 2021. Food insecurity is a pervasive public health concern in the United States and has been linked to poor dietary intake and diet quality, overweight and obesity (especially among women), and risk of other chronic diseases, such as diabetes, hypertension and dyslipidemia. </p> <p>To better understand food security status and address its associated health and dietary outcomes among low-income populations, a conceptualized model was built and served as research framework for the dissertation, including 1) internal factors and motivations, such as traits related to self-efficacy and sufficiency that may influence diet and health; 2) external factors of temporary support, such as financial benefits from assistance programs that low-income populations are eligible for that may influence diet and health; and 3) external factors of potentially long-term support, such as nutrition education programs targeting low-income groups that may foster internalized knowledge that could sustain impact and improvement of diet and health in the long-term. Each chapter of this dissertation addresses a component of the model.</p> <p>Cross-sectional analysis of a sample of rural veterans using food pantries quantified psychological traits related to self-motivation and efficacy including grit and help seeking, at the individual and internal factors level of the conceptualized model, and their links to food security and resource use, and revealed an inverse association between grit score and risk of food insecurity. The findings provided evidence for future interventions targeting food insecurity improvement to include education and resources that address traits related to self-efficacy, such as grit, among low-income populations to improve health outcomes directly or through improving food security or use of resources. </p> <p>Using nationally representative data, the second study investigated relationships between food assistance through the Supplemental Nutrition Assistance Program (SNAP) participation, a type of societal level external support, and dietary outcomes among low-income older U.S. adults. There were no differences in dietary quality, usual nutrient intake or risk of inadequacy between SNAP participants and eligible nonparticipants. Furthermore, results revealed a high prevalence of not meeting the Estimated Average Requirement from dietary sources for several nutrients (vitamins A, C, D, E, calcium, and magnesium) but the prevalence was lower when nutrients from dietary supplements were included. The results highlight a need for continued effort to improve nutrient and dietary intake among low-income older adults.</p> <p>External factors of potentially long-term support (e.g. nutrition education and food assistance) were evaluated for relationships with body mass index. A longitudinal sample of low-income women interested in participating in nutrition education through SNAP-Education (SNAP-Ed) was examined to determine the relationship between nutrition education (SNAP-Ed) and food assistance program participation through (SNAP, WIC), separately and in combination, with long-term changes in body mass index. No differences in changes of weight status over time were observed by nutrition education, food assistance, or combination participation. The prevalence of obesity was high among this sample, calling for targeted obesity prevention interventions and further support of healthy lifestyle promotion among low-income populations. </p> <p>The findings shown in this dissertation further reveal a high health burden among low-income groups. The studies filled several research gaps described in the conceptualized model. The results may be used to inform future tailored interventions to address food insecurity, dietary and health outcomes at individual and societal levels, incorporating internal motivation and external support to mediate health and dietary risks among low-income population.</p>

<p dir="ltr">Digital Health technologies have revolutionized healthcare delivery, offering innovative solutions that enhance access, improve patient outcomes, and optimize the use of resources. Despite this advancement, health outcomes remain disparate across different social groups, with underprivileged populations at an increased risk of poor health outcomes due to inadequate access to care. Digital Health technologies serve as a critical intervention in mitigating these disparities, particularly for groups affected by geographical, economic, and infrastructural barriers.<br><br>The purpose of this study was to conduct a review of the current state of Digital Health technologies, including Software as a Medical Device (SaMD), Wearable Health, Portable Diagnostic Devices, and remote care platforms, and their impact on healthcare accessibility. Employing qualitative methodology, this metasynthesis emphasized an important discovery: the need for a paradigm shift among stakeholders in healthcare towards integrated and digitally-driven patient care. This shift requires more than just an understanding of new technologies. It demands a fundamental re-evaluation of patient care methods and the orchestration of the entire healthcare system towards integrated digital practices. Importantly, this study found that the pace of digitalization must be carefully managed and cultural factors must be considered and signals the urgency for a balanced approach to digital integration in healthcare.</p>

This thesis examines how cultural competency operates as a regime of governmentality. Inspired by Foucauldian genealogy, institutional ethnography, and Said’s concept of contrapuntality, this thesis problematizes the seamless production of racialized bodies in relation to mental disorder. I begin by elaborating a theoretical framework for interpreting race and madness as mutually constructed ordering practices. I then analyze what cultural competence produces and sustains in a position paper published by the Ontario Federation of Community Mental Health and Addiction Programs. I argue the Federation dismisses ongoing institutional violence—suggesting it is simply the perception, as opposed to the everyday reality, of discrimination that causes problems such as low educational attainment among youth of colour. To further support this claim, I deconstruct narratives of low self-esteem, maladaptive coping, depression, and denial of mental illness in the community needs assessments of two of the Federation’s member organizations: Hong Fook and Across Boundaries.

This thesis examines how cultural competency operates as a regime of governmentality. Inspired by Foucauldian genealogy, institutional ethnography, and Said’s concept of contrapuntality, this thesis problematizes the seamless production of racialized bodies in relation to mental disorder. I begin by elaborating a theoretical framework for interpreting race and madness as mutually constructed ordering practices. I then analyze what cultural competence produces and sustains in a position paper published by the Ontario Federation of Community Mental Health and Addiction Programs. I argue the Federation dismisses ongoing institutional violence—suggesting it is simply the perception, as opposed to the everyday reality, of discrimination that causes problems such as low educational attainment among youth of colour. To further support this claim, I deconstruct narratives of low self-esteem, maladaptive coping, depression, and denial of mental illness in the community needs assessments of two of the Federation’s member organizations: Hong Fook and Across Boundaries.

Made available in DSpace on 2011-05-04T12:36:26Z (GMT). No. of bitstreams: 0 Previous issue date: 2010 / Trata-se do estudo do caso do Estado do Rio de Janeiro, no período compreendido entre 2003 e 2006. Analisa o papel da instância estadual na distribuição geográfica (municipal e regional) dos recursos financeiros para o financiamento do Sistema Único de Saúde e propõe-se contribuir para a operacionalização de formas mais justas de alocação dos recursos. O estudo empírico, de natureza quantitativa, analisou as receitas públicas realizadas pelos municípios do estado RJ e as despesas liquidadas pelo Estado RJ durante o mesmo período. A análise constou de três momentos. Primeiro: evolução das condições de financiamento em saúde do governo estadual e do conjunto dos municípios do Estado do Rio de Janeiro. Segundo: possibilidade de interferência do governo estadual na capacidade de gasto dos municípios do Estado RJ. Terceiro: alocação equitativa de recursos segundo critérios de necessidades de saúde. As distintas fontes de receitas foram agrupadas de modo a conferir certa racionalidade na compreensão de como se estrutura o financiamento do SUS considerando a lógica federativa que preside ao sistema de partilha de recursos no caso geral do Brasil e, especificamente, no caso do Estado RJ. O estudo foi norteado pela concepção de equidade operacionalizada através da definição de igualdade de oportunidades de Sen (2008), além da definição de igualdade de condições, da tipologia de Turner (1986). Observou-se que os critérios de alocação entre as esferas federativas não foram suficientes para garantir a equidade. Os municípios, tanto quanto as regiões de saúde, apresentam condições de financiamento bastante díspares, relacionadas às características do desenvolvimento regional, à importância de determinadas fontes de recursos em detrimento de outras, às condições de elegibilidade para o recebimento de transferências constitucionais e legais, à capacidade fiscal e a outras condições. A principal fonte de financiamento da saúde no Estado RJ é a receita própria municipal. As transferências federais para a Atenção Básica não modificam essa disparidade inter-regional. As transferências federais para a média e alta complexidade favorecem os municípios com maior capacidade instalada, consolidando as desigualdades existentes. Os recursos estaduais transferidos aos municípios não alteram as características das desigualdades no financiamento da saúde. / This is the case study of Rio de Janeiro, in the period between 2003 and 2006. Examines the role of the instance state in the geographical distribution (municipal and regional) financial resources for financing the Health System and aims to contribute to the operation of more equitable allocation of resources. The empirical, quantitative, reviewed the revenue made by municipalities in RJ and RJ expenses paid by the State during the same period.The analysis consisted of three stages. First, changing conditions in health funding from the state government and all the municipalities of Rio de Janeiro. Second, the possibility of government interference in state spending capacity of municipalities in the state RJ. Third, equitable allocation of resources according to criteria of health needs. The different sources of revenue were grouped so as to give some rationality in the understanding of how to structure the financing of SUS considering the logic which governs the federal system of resource sharing in the general case of Brazil and, specifically, in the case of RJ State.The study was guided by the concept of equality operationalized through the establishment of equal opportunities Sen (2008), beyond the definition of equal conditions of the typology of Turner (1986). It was observed that the criteria for allocation between the federal spheres were not sufficient to ensure equality. The municipalities, as far as health regions, have conditions of very disparate funding related to the characteristics of regional development, the importance of certain sources of funds over others, the eligibility criteria for receiving legal and constitutional transfers, the fiscal capacity and other conditions.The main source of health financing in the State's own revenues RJ municipalities. Federal transfers for Primary Health Care not alter the interregional disparity. Federal transfers to the medium and high complexity favor the municipalities with greater capacity, reinforcing existing inequalities. The state funds transferred to municipalities do not alter the characteristics of inequalities in health financing.