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ArbetsDax - för psykiskt funktionshindrade : Talet om klienter, samordnare och samverkan i en verksamhet för arbetslivsinriktad rehabiliteringGustafsson, Mikael January 2009 (has links)
<p>Efter den rikspolitiska psykiatrireformen i mitten av 1990-talet uppstod runt om i Sverige rehabiliteringsverksamheter för psykiskt funktionshindrade människor. Att utveckla samverkan mellan olika myndigheter och andra organisationer kom då att anses som viktigt för att berörda personer inte skulle hamna "mellan stolarna". Inom Eskilstuna kommun uppstod bland annat en arbetslivsinriktad interorganisatorisk rehabiliteringsverksamhet kallad <em>ArbetsDax</em>, med professionella på operativ nivå som kallades <em>samordnare</em>.</p><p>Syftet med framställningen har varit att utifrån olika materialtyper i sociologisk mening försöka bidra till begripliggörandet av <em>verksamhetens diskursiva karaktär</em> och<em> samordnarens professionskaraktär</em>. Det förstnämnda var intressant utifrån antagandet att den språkliga praktiken utgjorde något högst väsentligt inom verksamheten - särskilt med fokus på hur <em>klienter</em>, <em>samordnare</em> och <em>samverkan</em> framställdes. Det sistnämnda var intressant utifrån antagandet att ArbetsDax samordnare kunde bidra med något kvalitativt/kvantitativt annorlunda än professioner på de "rena" myndigheter, främst försäkringskassan och arbetsförmedlingen, som ArbetsDax samverkade med.</p><p><em>Den diskursiva karaktären </em>inom verksamheten framstod i analysen som ett komplext <em>konsensusarbete</em>. <em>Klienten</em> konstruerades som en kluven identitet som å ena sidan orienterade sig mot en individ med den enligt arbetslinjen "rätta" viljan, men å andra sidan också mot erkännandet av en begränsad förmåga bestående av psykiska funktionshinder. <em>Samverkan</em> framställdes i direktiv för och problematisering av verksamheten, vilket bland annat gjordes med hjälp av intertextuella legitimitetsreferenser och den centrala metaforen rehabiliteringskedjan. Stort fokus fanns på språkvärdsliga skillnader mellan organisationerna, samtidigt som det fanns en strävan att på mer eller mindre subtila vis mildra åtskillnaden. I analysen framstod ändå försäkringskassan som "blåslampa", arbetsförmedlingen som "bromskloss" och kommunen som "försvarare" av verksamheten.</p><p><em>Samordnarens professionskaraktär</em> analyserades genom jämförelser av vad som framkom i det empiriska materialet med två teorier: dels Roine Johanssons teori om strukturella dimensioner för <em>gräsrotsbyråkrater</em> inom "rena" myndigheter som försäkringskassan och arbetsförmedlingen, och dels Mats Börjesson & Eva Palmblads teori om den nutida <em>välfärdsarbetarens</em> språkliga praktik. Analysen gav att samordnaren framställdes som en gräsrotsbyråkratisk profession med tämligen stort handlingsutrymme, men därutöver som en gränsöverskridande "hybridprofession" vars insats till stor del bestod i ett <em>konsensusarbete</em> i relation till klienter, samverkande organisationsrepresentanter, arbetsgivare hos vilka klienterna arbetstränade, samt i relation till betalningsmakten inom verksamheten.</p><p>Avslutningsvis framkommer i uppsatsens senare del slutsatsen att ArbetsDax framstår som ett försök att utveckla välfärdsarbetets organisation i riktning bort från forna tiders omyndigförklarande socialpolitik. Med konsekvensen att en ny profession, samordnaren, uppstått.</p>
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KOMMUNIKATION OCH SAMSPEL I RÖRELSE : Sherbornemetodik med en ung man på tidig utvecklingsnivå och med autism / COMMUNICATION AND INTERACTION IN MOVEMENT : Intervention with Sherborne Developmental Movement (SDM) with a young man with profound autism spectrum disorder and a severe communication impairmentBrandquist, Ingrid January 2009 (has links)
<h2>SYFTE</h2><p>Syftet med denna uppsats är att analysera hur kommunikations- och samspelsförmåga uttrycks över tid när en ung man på tidig utvecklingsnivå och med autism deltar i en dyad i sherbornebehandling. Frågeställningar:</p><ol><li>Hur utvecklas kommunikations- och samspelsförmåga över tid i behandlingssituationen? </li><li>Hur utvecklas kommunikations- och samspelsförmåga i hemmet respektive skolan under samma tidsperiod? </li></ol><h1> </h1><h2>METOD</h2><p>Denna pre-experimentella fallstudie rör en 18-årig man som under drygt ett år kom till habiliteringen för att delta i arton sherbornebehandlingar med en sjukgymnast med mångårig erfarenhet av sherbornemetodik. Sherborne är en rörelsemetodik där rörelser används för att utveckla rums- och kroppsmedvetenhet och skapa relationer till andra. Samtliga arton behandlingar videofilmades och data insamlades via observation. En detaljerad nedteckning av händelseförloppet i en videoinspelning i början av behandlingsperioden och en i slutet gjordes. Under arbetet med att analysera kommunikation och samspel i videoinspelningarna uppkom behovet av att komplettera Sherbornes samspelsskala med ett bedömningsmaterial för att kunna analysera kommunikation och samspel i detalj<em> </em>med <em>personer på tidig nivå</em>, ”Brandquists & Althoffs Samspelsskala: Analys av samspel med personer på tidig utvecklingsnivå - Sherborne”, bilaga 7. För att öka tillförlitligheten i resultatet inhämtades dels kommentarer från deltagande sjukgymnast och mannens förälder under det att de såg de båda videofilmerna, dels gjordes en översiktlig analys av tio övriga videoinspelningar från sherborneperioden. Förälder och lärare intervjuades före och efter behandlingsperioden om den unge mannens kommunikation och samspelsförmåga i hemmet och på skolan.</p><h2>RESULTAT</h2><p>Resultat visar på en positiv effekt på den unge mannens förmåga till kommunikation och samspel. Under sherborneperioden framkommer gradvis en förändring av hur mannen riktade sin uppmärksamhet: från att blicken var ”tom” eller att blicken svepte över rummet till att han allteftersom kroppsligen riktade sig mot sjukgymnasten och sökte blickkontakt. Sjukgymnasten anpassade sitt förhållningssätt för att få till stånd ett så bra samspel som möjligt. Från att hon i början var mer inlyssnande och använde beröring för att bekräfta hans reaktioner, till användandet av ett ökat verbalt inslag mot slutet. I slutet av perioden började den unge mannen ta egna initiativ till samspel genom att rikta sin hand mot sjukgymnasten. Även i hem och skola ökade hans intresse för omgivningen. Han tog initiativ till kommunikation (ett ökat antal handlingssekvenser) och var på gång att utveckla delad uppmärksamhet. Han började säga ifrån mer genom att använda sin röst. Det självskadande beteendet minskade både under sherbornebehandlingen och i hemmet. I övrigt märkte både förälder och sjukgymnast en ökad balans och stabilitet i hans kropp och en förbättrad rörelseförmåga i hans svaga högersida.</p><p> </p><h2>SLUTSATSER</h2><p>Fallstudien tyder på att sherbornemetodik kan ha bidragit till en positiv effekt på såväl kommunikation och samspelsförmåga som rörelseförmåga hos denne unge man på tidig utvecklingsnivå och med autism.</p> / <h2>INTRODUCTION</h2><p>Caregivers perceive many of difficulties in interaction with persons at a presymbolic stage. In Sherborne Developmental Movement the theoretical issue is that movement experiences developing body and spatial awareness contribute to awareness of self. This gaining of body mastery is fundamental to the awareness of others, the ability to relate to others.</p><p> </p><p>The aim of this study is to analyse how communication and interaction is expressed over a period of time as a young man in an early stage of language development (pre-intentional communication) and with autism participates in a dyad in SDM sessions. Research questions:1. How do communication and interaction skills develop over time in the SDM sessions? 2. How do communication and interaction skills develop at home and school during the same period?</p><h2>METHOD</h2><p>In this pre-experimental case study an 18-year-old man with profound autism spectrum disorder, a right-sided motor disorder and a severe language impairment is participating. Giving no responses in communication, caregivers rarely perceived successful interaction. He suddenly burst out in aggressive acts. Lasting over a year he participated in an intervention consisting of eighteen SDM sessions in a dyad with a physiotherapist, skilled in SDM, at Habilitation Centre. Sessions were based on a “caring” SDM-relationship and treatment focused on basic movements. All sessions were videotaped. Communication and interaction skills were thoroughly assessed at the first and last session. In the process of analysing data the SDM scale of type of relation had to be supplemented by scales showing abilities of communication and interaction of the leader and the participant. This scale named "Brandquists & Althoff Interaction Scale: Analysis of the interaction with individuals at an early stage of development - Sherborne”, was used in reporting the data obtained in the study.</p><p>To increase the reliability of the data, comments from the participating physiotherapist and the father of the young man were registered while they individually watched the two video recordings. A somewhat simplified examination of ten of the video recordings was also made. Communication and interaction skills were also investigated at home and school through interviews and questionnaires before and after the SDM treatment. These data were then to be compare to the data of the SDM sessions.</p><p> </p><h2>RESULTS</h2><p>Results show a positive effect on communication and interaction skills of the young man. During the period of sessions he gradually changed the way of directing attention. Initially his eyes were "empty" or his gaze swept across the room to him. Later he focused on the hands of the physiotherapist while rocking his leg and eventually he physically directed himself to the physiotherapist and searched eye contact. The physiotherapist was sensitive to his physical reactions adapting her approach in order to making him feel secure and achieve trust. In the beginning she used tactile methods in her communication, but seeing he felt more secure she introduced more verbal confirming towards the end. At the end of the period he began to take communicative initiatives by approaching his hand and “pointing” at the physiotherapist.</p><p> </p><p>At home and school caregivers reported an increasing interest in the environment. He used more initiative for communication (an increased number of action sequences) and was on his way to develop joint attention. He started to use his voice to protest. The number of self-destructive behaviours decreased during the Sherborne sessions and at home. Successively he gained greater stability and balance in his body and the mobility of the weak side improved. The data obtained in interviews with caregivers confirmed the results achieved in the study and strengthened the reliability of the results of SDM.</p><h2>CONCLUSIONS</h2><p>The result of the study implies that SDM may have contributed to a positive effect on the communication and interaction skills of this young man.</p>
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Vuxna med förvärvad traumatisk hjärnskada - omställningsprocesser och konsekvenser i vardagslivet : En studie av femton personers upplevelser och erfarenheter av att leva med förvärvad traumatisk hjärnskada / Adults with acquired traumatic brain injury – the changeover process and consequences in every day life : A study of fifteen persons’ experience of living with acquired traumatic bran injuryStrandberg, Thomas January 2006 (has links)
<p>The overall purpose of this study is to illuminate the changeover process experienced by individuals who as adults acquired a traumatic brain injury (TBI), to increase the knowledge and the understanding of this process, and describe the meaning of support in every day life.</p><p>Persons who acquired a TBI as adults were administered a semi-structured interview covering six areas: consequences of TBI, family and social networks, working life and occupation, life-changes, support from society and everyday life. The interviews were qualitative and in-depth. A total of 15 informants participated, aged between 19-53 years when injured. Data were structured and underwent two phases of analysis. In the first phase, data underwent latent content analysis, underpinned by a hermeneutic approach, and in the subsequent phase, reanalysed within a framework derived from the theory of social recognition.</p><p>Findings from the first phase of inductive analysis elicited key themes: (i) the meaning of care, a question of formal and/or informal support; (ii) the meaning of action, a question of activity versus inactivity; (iii) autonomy, a question of dependence versus independence; (iv) social interaction, a question of encounter and/or treatment; (v) the theme of changes, a question of process versus stagnation; and (vi) emotions, an oscillation between hope versus hopelessness. After the construction of the six themes each of them were, through a discursive analysis, connected with theories, earlier studies in the field of brain injuries and important interview quotations from the empirical material. During this phase, an interest developed to study the material from a new theoretical point of view. The second phase of analysis therefore involved the development of a framework derived from Honneth’s (1995) theory of social recognition. The central construct of ‘recognition’ was analysed from three different dimensions proposed by Honneth: the individual dimension, the legal dimension, the value dimension. Using this framework, the data were reanalysed. The scientific term for this process of re-contextualisation and re-description of data is abduction inference.</p><p>Reported consequences were negative as well as positive. Significant others (e.g. next of kin) had an important function as a driving force for training and preparation for life-situation after injury. A majority of the informants were satisfied with support from society, such as hospital-care, rehabilitation and community support. Such support, initially, proceeded without problems but as time passed, the responsibility shifted to the person with TBI to take the initiative in arranging longer-term services. Long-term support which addresses physical, cognitive as well as psychosocial consequences of the TBI is important for outcomes. The majority of the informants had difficulties in returning to working life after the injury. The outcomes and recovery seemed to be a prolonged process, probably never ending, but which gradually over time becomes integrated as a part of life. The informants gave varying accounts of the extent to which they experienced social recognition.</p>
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Rättvis idrottsundervisning för elever med rörelsehinder : dilemma kring omfördelning och erkännandeJerlinder, Kajsa January 2005 (has links)
<p>Jerlinder, Kajsa (2005): Rättvis idrottsundervisning för elever med rörelsehinder –dilemma kring omfördelning och erkännande. (Justice in Physical Education forPhysically Disabled Pupils – A Dilemma of Distribution and Recognition.) Studiesfrom The Swedish Institute for Disability Research No. 12, pp. 112. LicentiateDissertation, written in Swedish with an English abstract.The educational goal of “a school for all” creates many challenges. Issues of socialjustice and equity are central tenets of the concept of inclusive education. Despitethe goal of comprehensive education for all children, for many pupils with physicaldisabilities in an inclusive school system PE (Physical Education) teaching canresult in experiences of injustice. In the struggle to achieve social equity and createeducational experiences where disability does not matter, it seams to matter verymuch.The aim of this study is to illustrate a dilemma and its potential outcomeswhere demands for justice for pupils with physical disabilities are raised in inclusivephysical education. In the study, based on theories of redistribution andrecognition, two empirical examples are presented.The first example, in the context of the decentralisation of Swedish compulsoryschools, illustrates degrees of awareness about numbers of pupils with physicaldisabilities attending compulsory schools located in a case municipality. Foursources, with varying responsibilities for disabled children, all reported differentnumbers of pupils. Thus, with no congruent data at municipality level, distribu-tion and redistribution of necessary resources becomes difficult.In the second example of a ten year old boy with a physical disability,experiences of participation in inclusive physical education are described, fromthe perspective of five different actors (the boy himself, his PE teachers (2), hisparents, classmates, and his personal assistant).Data for this case study was gathered through interviews and systematic ob-servation. In this particular case, the outcome of inclusive PE was judged to besuccessful. The example illustrates the importance of recognition needing to befulfilled at several distributive levels. The positive outcome is discussed in terms ofthe combination of identification of particular special needs, sensitive adaptation,and general respect for the child with physical disability.Dilemmas of justice for disabled pupils in physical education are best studiedwithin a multi-level context. Recognition and redistribution demands need to besimultaneously addressed in order to fulfil the goal of equitable education forpupils with physical disabilities attending PE within the compulsory school sys-tem. An attempt to combine these different ideological approaches is discussedfrom the perspective of social status.The outcome of the two empirical examples presented in this study illustrategeneral dilemmas reaching beyond the educational challenges facing pupils withphysical disabilities and the responses of the compulsory school system to them.</p><p><img src="file:///tmp/moz-screenshot.jpg" /></p>
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När hjulen sätts i rullning : En socialpsykologisk studie om individens upplevelse av sin identitet efter att ha blivit rullstolsburen / When the wheels starts spinning : A social psychological study regarding the experience of identity among individuals who has become chairboundNordin, Agnes, Maleki, Alexandra January 2010 (has links)
Syftet med studien är att skapa en ökad förståelse inom berörda yrkes- och studentgrupper för hur individer, som blivit rullstolsburna senare i livet, upplever sin identitet och eventuella identitetsförändringar. Resultatet tolkades utifrån Anthony Giddens teorier om senmodernitet och identitet samt Peter L. Berger och Thomas Luckmanns kunskapssociologiska perspektiv. Den tidigare forskningen har berört funktionshinder och identitet utifrån olika aspekter, dock har inte syftet för denna studie behandlats i sin helhet i andra studier. Semistrukturerade intervjuer genomfördes med sex stycken respondenter för att nå deras upplevelser. Utifrån det material som inkommit genom intervjuerna har åtta stycken kategorier framträtt: självbild, yttre attribut, vanor och rutiner, arbete och fritid, relationer, bemötande från andra, drömmar och planer samt handikappanpassning. I studien framkommer att respondenterna använder framträdande och uppträdande för att påverka den spegling de får av omgivningen. Studien visar även att det har skett en förändring av respondenternas regimer och rutiner. En identitetsförändring har därmed skett hos respondenterna. I studien diskuteras även det faktum att respondenterna själva inte framhåller den identitetsförändring som påvisas i studien. Detta tyder på att respondenterna inte själva tänker på förändringen i sig, de tänker mer indirekt på förändringen genom att denna påverkat dem i olika situationer. I studien framkommer även vikten av det omgivande samhällets attityd gentemot den funktionshindrade när det gäller speglingen av individen. Detta är av relevans för de instanser i samhället som arbetar med frågor rörande funktionshinder.
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Fader Vår : om fäder med intellektuella funktionsnedsättningarÅhlund, Iren January 2010 (has links)
Most studies on parenthood and learning difficulties focus on mother and child, and very little is know about fathers with learning difficulties. Moreover, people with learning difficulties are rarely asked to tell their own narratives. The aim of the current study is to identify the role of the father in families where one or both of the parents have learning difficulties. Laws and regulations concerning the rights of people with learning difficulties in Sweden are accounted for and the he social support system for all parents in Sweden are described . The empirical study is a qualitative phenomenological interview study, inspired by narrative traditions, and describes how fathers with learning difficulties experience these support systems. The main data are two life stories of fathers with learning difficulties and one observation in a family. The findings suggest that although Sweden has a highly regarded disability policy and social support system, and even though fathers with learning difficulties are assured equal rights as members of the society and as parents by the Act of Human Rights, they are not treated equal but still faces structural inequalities. Their strengths and needs are not recognized, gender based support is not used and last but not least there is a lack of adequate competence in the support system. As long as the fathers are not included in the discussions about strengths and weaknesses in families with at least one parent with learning difficulties, these families are not given reasonable chances of fulfilling their parenthoods.
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Spänningen mellan normalitet och avvikelse : om skolans insatser för elever i behov av särskilt stödIsaksson, Joakim January 2009 (has links)
In Sweden, an increasing number of pupils are defined as having some form of difficulties in school. In order to receive special support measures in school, these difficulties must have been subject to a pedagogical examination that state that the pupil is in need of special support measures. This work of identifying and defining difficulties implies that questions about normality and deviance inevitably come into play in school. There has been an increasing demand in school politics to identify these difficulties as early as possible, and this demand has placed further pressure on school personnel in this issue. Furthermore, the personnel’s perspective on the difficulties is also important, i.e., in terms of their origin, because this has importance for the design and content of the special support measures. The overall aim of this thesis is to analyse the tension between normality and deviance that is manifested in the school’s work procedures for pupils with special educational needs. Related to the overall aim, four overarching research questions are addressed. How have pupils with special educational needs and special education been articulated in national policy documents during recent decades? What perspective on school difficulties are being portrayed in schools’ individual educational plans for pupils with special educational needs? How do school personnel identify and differentiate pupils with special educational needs from “normal” pupils? How do pupils with special educational needs and their parents experience the special support measures that they receive in school and what seems to be the main concern of such support measures? The thesis consists of four studies that are based on different empirical materials such as policy documents, individual educational plans (IEPs) and qualitative interviews with school personnel, pupils and parents. The methods that are used for analysing the material are policy analysis, content analysis and grounded theory. The results show that the target group for special support measures has been ascribed with different meanings (over time) in policy documents, something that has affected the recommendations of the support measures and the choice of actors who are assigned to provide such support. Furthermore, the IEPs, as well as the interviews, reveal that an individual perspective on school difficulties seems to be deeply rooted in school. The identification process of special educational needs followed three models: a pedagogical model, a social model, and a medical/health model. However, the process of sorting out and defining these pupils invoked ambivalent feelings in the school personnel and the school class usually became the frame of reference for normal or deviant behaviour. Finally, the pupils’ and parent’ main concern of special support measures in school were described as a struggle for recognition and inclusion. The results are discussed with theoretical perspectives on school difficulties and special education. In the concluding discussion, it is argued that pupils with special educational needs have to balance between normality and deviance in school, but also between a pedagogical and a medical discourse by means of having a medical diagnosis in school.
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KOMMUNIKATION OCH SAMSPEL I RÖRELSE : Sherbornemetodik med en ung man på tidig utvecklingsnivå och med autism / COMMUNICATION AND INTERACTION IN MOVEMENT : Intervention with Sherborne Developmental Movement (SDM) with a young man with profound autism spectrum disorder and a severe communication impairmentBrandquist, Ingrid January 2009 (has links)
SYFTE Syftet med denna uppsats är att analysera hur kommunikations- och samspelsförmåga uttrycks över tid när en ung man på tidig utvecklingsnivå och med autism deltar i en dyad i sherbornebehandling. Frågeställningar: Hur utvecklas kommunikations- och samspelsförmåga över tid i behandlingssituationen? Hur utvecklas kommunikations- och samspelsförmåga i hemmet respektive skolan under samma tidsperiod? METOD Denna pre-experimentella fallstudie rör en 18-årig man som under drygt ett år kom till habiliteringen för att delta i arton sherbornebehandlingar med en sjukgymnast med mångårig erfarenhet av sherbornemetodik. Sherborne är en rörelsemetodik där rörelser används för att utveckla rums- och kroppsmedvetenhet och skapa relationer till andra. Samtliga arton behandlingar videofilmades och data insamlades via observation. En detaljerad nedteckning av händelseförloppet i en videoinspelning i början av behandlingsperioden och en i slutet gjordes. Under arbetet med att analysera kommunikation och samspel i videoinspelningarna uppkom behovet av att komplettera Sherbornes samspelsskala med ett bedömningsmaterial för att kunna analysera kommunikation och samspel i detalj med personer på tidig nivå, ”Brandquists & Althoffs Samspelsskala: Analys av samspel med personer på tidig utvecklingsnivå - Sherborne”, bilaga 7. För att öka tillförlitligheten i resultatet inhämtades dels kommentarer från deltagande sjukgymnast och mannens förälder under det att de såg de båda videofilmerna, dels gjordes en översiktlig analys av tio övriga videoinspelningar från sherborneperioden. Förälder och lärare intervjuades före och efter behandlingsperioden om den unge mannens kommunikation och samspelsförmåga i hemmet och på skolan. RESULTAT Resultat visar på en positiv effekt på den unge mannens förmåga till kommunikation och samspel. Under sherborneperioden framkommer gradvis en förändring av hur mannen riktade sin uppmärksamhet: från att blicken var ”tom” eller att blicken svepte över rummet till att han allteftersom kroppsligen riktade sig mot sjukgymnasten och sökte blickkontakt. Sjukgymnasten anpassade sitt förhållningssätt för att få till stånd ett så bra samspel som möjligt. Från att hon i början var mer inlyssnande och använde beröring för att bekräfta hans reaktioner, till användandet av ett ökat verbalt inslag mot slutet. I slutet av perioden började den unge mannen ta egna initiativ till samspel genom att rikta sin hand mot sjukgymnasten. Även i hem och skola ökade hans intresse för omgivningen. Han tog initiativ till kommunikation (ett ökat antal handlingssekvenser) och var på gång att utveckla delad uppmärksamhet. Han började säga ifrån mer genom att använda sin röst. Det självskadande beteendet minskade både under sherbornebehandlingen och i hemmet. I övrigt märkte både förälder och sjukgymnast en ökad balans och stabilitet i hans kropp och en förbättrad rörelseförmåga i hans svaga högersida. SLUTSATSER Fallstudien tyder på att sherbornemetodik kan ha bidragit till en positiv effekt på såväl kommunikation och samspelsförmåga som rörelseförmåga hos denne unge man på tidig utvecklingsnivå och med autism. / INTRODUCTION Caregivers perceive many of difficulties in interaction with persons at a presymbolic stage. In Sherborne Developmental Movement the theoretical issue is that movement experiences developing body and spatial awareness contribute to awareness of self. This gaining of body mastery is fundamental to the awareness of others, the ability to relate to others. The aim of this study is to analyse how communication and interaction is expressed over a period of time as a young man in an early stage of language development (pre-intentional communication) and with autism participates in a dyad in SDM sessions. Research questions:1. How do communication and interaction skills develop over time in the SDM sessions? 2. How do communication and interaction skills develop at home and school during the same period? METHOD In this pre-experimental case study an 18-year-old man with profound autism spectrum disorder, a right-sided motor disorder and a severe language impairment is participating. Giving no responses in communication, caregivers rarely perceived successful interaction. He suddenly burst out in aggressive acts. Lasting over a year he participated in an intervention consisting of eighteen SDM sessions in a dyad with a physiotherapist, skilled in SDM, at Habilitation Centre. Sessions were based on a “caring” SDM-relationship and treatment focused on basic movements. All sessions were videotaped. Communication and interaction skills were thoroughly assessed at the first and last session. In the process of analysing data the SDM scale of type of relation had to be supplemented by scales showing abilities of communication and interaction of the leader and the participant. This scale named "Brandquists & Althoff Interaction Scale: Analysis of the interaction with individuals at an early stage of development - Sherborne”, was used in reporting the data obtained in the study. To increase the reliability of the data, comments from the participating physiotherapist and the father of the young man were registered while they individually watched the two video recordings. A somewhat simplified examination of ten of the video recordings was also made. Communication and interaction skills were also investigated at home and school through interviews and questionnaires before and after the SDM treatment. These data were then to be compare to the data of the SDM sessions. RESULTS Results show a positive effect on communication and interaction skills of the young man. During the period of sessions he gradually changed the way of directing attention. Initially his eyes were "empty" or his gaze swept across the room to him. Later he focused on the hands of the physiotherapist while rocking his leg and eventually he physically directed himself to the physiotherapist and searched eye contact. The physiotherapist was sensitive to his physical reactions adapting her approach in order to making him feel secure and achieve trust. In the beginning she used tactile methods in her communication, but seeing he felt more secure she introduced more verbal confirming towards the end. At the end of the period he began to take communicative initiatives by approaching his hand and “pointing” at the physiotherapist. At home and school caregivers reported an increasing interest in the environment. He used more initiative for communication (an increased number of action sequences) and was on his way to develop joint attention. He started to use his voice to protest. The number of self-destructive behaviours decreased during the Sherborne sessions and at home. Successively he gained greater stability and balance in his body and the mobility of the weak side improved. The data obtained in interviews with caregivers confirmed the results achieved in the study and strengthened the reliability of the results of SDM. CONCLUSIONS The result of the study implies that SDM may have contributed to a positive effect on the communication and interaction skills of this young man.
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Föräldrar med funktionshinder : om barn, föräldraskap och familjeliv / Parents with disabilities : on the subject of children, parenthood and family lifeGustavsson Holmström, Marie January 2002 (has links)
An increasing number of people with disabilities are choosing to become parents. However, several official goverment reports and other evidence points to the fact that parents with disabilities sometimes experience negative bias and distrust of their capacities as parents. The aim of this study is to describe and analyse aspects of parenthood in the families including parents with disabilities and/or chronic illness, as well as to illuminate concepts of an thoughts on parenthood and disability in these families. This is a qualitative interview study, complemented with structured diaries and network maps. The impairments or chronic illness of the parents in the eleven families of the study are cerebral palsy, spinal cord injury and multiple sclerosis. The different areas of the study are: the parents' reflections on becoming parents, the impact of the surrounding environment on the family, the effects of impairment or chronic illness in the family's everyday life and the parents' reflections on children and parenthood. The parents first and foremost describe their families as like any other families, but at the same time describe the special circumstances they live under. They work to handle the possibilities of negative consequences for the children with different strategies. The parents describe what they regard as the special experiences and knowledge that their children acquire which will benefit them as adults. The study recognises some dichotomous concepts relevant to different areas of family life in families with disabilities. The feeling the parents express of living in a world of double standpoints can be understood as ambivalence or in terms of embrace of paradox.
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Alla barn är våra barn : om vägen till skolan för allaBrolin, Rosita January 2011 (has links)
Tanken om den inkluderande skolan har under en längre tid debatterats livligt av forskare från olika vetenskapliga discipliner. Det som i huvudsak har diskuterats är om, och i så fall varför, alla elever skall undervisas tillsammans eller inte. Märkligt nog har frågan om hur en inkluderande skola kan uppnås inte alls fått samma uppmärksamhet. Syftet med den här studien är att öka kunskapen om och förståelsen för hur ”den inkluderande skolan” kan skapas och hur personal, elever och föräldrar upplever en skola som strävar efter att bli fullständigt inkluderande. Studien bygger på kvalitativa, semistrukturerade intervjuer i en skola vars uttryckliga ambition är att bli en skola för alla elever. Tretton personer intervjuades: fem av skolans personal, fyra elever och fyra föräldrar. I resultatet framkommer det att begreppet ”en skola för alla” har olika betydelse för de intervjuade personerna. Eleverna beskriver ”en skola för alla” som en skola där alla trivs och mår bra. De använder ord som glädje och kamratskap, medan skolpersonalen i huvudsak relaterar till lärande, flexibilitet i undervisningsmetoder, olika former av stöd, storleken på klasserna, antal lärare i klassrummen samt tillgången till tekniska hjälpmedel. / Researchers from different disciplines have debated the idea of inclusion in relation to the educational system for quite a while and the debate is still ongoing. The debate has mainly focused on why and whether all children should be educated together. Interestingly, the question of how inclusion could be achieved has not received the same attention. The purpose of this study is to increase the knowledge and understanding of how “the inclusive school” can be created and how a school that attempts to reach full inclusion is experiences by staff, pupils and parents. Qualitative, semi-structured interviews were conducted in a school that has the explicit aim of becoming a school that includes all children. Thirteen people were interviewed: five of the staff, four children and four parents. The results indicate that there are different views among the participants about “the inclusive school”. While the children appear to associate an inclusive school with a feeling of well being and mention words like happiness and friendship the staff mention more knowledge related concepts, such as learning, flexibility in teaching methods, support forms, class size, number of teachers in the classrooms and technical facilities.
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