Global ETD Search

571	The use of patient-derived tissue in biomedical research / Kruszewski, Zita. January 1998 (has links) No description available. Donation of organs, tissues, etc. Feminist ethics. Informed consent (Medical law)
572	The Journey Towards Global Implementation of Holistic Sexuality Education : A Comparative Case Study of Sexuality Education Guidelines from UNESCO (Global), WHO (Europe), and SIECUS (USA) Garoutte, Nicola January 2022 (has links) Sexuality education is a fundamental children's right, women’s right and overall human right that has not been successfully implemented in primary, secondary, or higher education throughout the globe. Sexuality education promotes children, adolescents, and teenagers safety exploring their sexuality and developing their attitudes, values, and skills. A literature review was conducted that indicates there is a gap of knowledge between sexual ethics in relation to comprehensive sexuality education and holistic sexuality education. The purpose of this study is to gain understanding of comprehensive sexuality education and holistic sexuality education by comparing vertically, horizontally, and traversally three guidelines on three levels, global, regional, and national. Critical and feminist theory are frameworks in qualitative research methods implemented in the thesis to thematically analyze secondary data throughout UNESCO International Technical Guidance on sexuality education, WHO Standards for Sexuality Education in Europe, and SIECUS’s Guidelines for CSE in USA. The results found that from an intersectional feminist perspective, learning about consent and setting boundaries is essential for the promotion of holistic sexuality education thats overcomes the limitations of comprehensive sexuality education and empowers youth to explore their sexuality further. Therefore, basing sexual ethics as a foundation for holistic sexuality education with an overarching goal of global implementation can challenging due to existing social structures and power imbalances. The advocacy and awareness of holistic sexuality education is crucial in order to for youth to access their children’s rights and human rights. This thesis advocates for sexual ethics and intimate citizenship as main pillars of sexuality and holistic sexuality education through consent and respecting boundaries. sexuality sexuality education holistic sexuality education comprehensive sexuality education sexual ethics consent intimate citizensihp intersectionality feminist theory critical theory Social Sciences Samhällsvetenskap
573	"Vi tar ju beslut som inte är för barnets bästa" : En kvalitativ studie gällande socialsekreterares erfarenheter av arbetet kring barns behov och föräldrars samtycke. Kullman, Izabella, Bister, Ida January 2024 (has links) Denna studie syftar till att undersöka socialsekreterares erfarenheter av hur barns behov och vårdnadshavares samtycke påverkar barnavårdsutredningars arbete och beslut. Studiens tidigare forskning behandlar bedömningar och beslut, samtycke och samarbete med föräldrar, barnets bästa och behov, barnets och föräldrars rättigheter samt socialsekreterares förutsättningar. Studien genomfördes med semistrukturerade intervjuer med sex socialsekreterare från två svenska kommuner, baserat på ett bekvämlighetsurval utifrån ett målstyrt urval. Resultaten visar att socialsekreterarna anser att deras bedömningar av barns behov inte påverkas av vårdnadshavares samtycke. Dock anses beslut om insatser påverkas av vårdnadshavares samtycke, så länge det inte finns skäl för tvångsåtgärder. Socialsekreterarna identifierar bemötande, motivationsarbete, kunskap om arbetets möjligheter och arbetslivserfarenhet som viktiga framgångsfaktorer. Socialsekreterarna upplever organisatoriska begränsningar, resursbrist, en negativ syn av socialtjänsten hos vårdnadshavare samt att rådande lagar är bristfälliga och motstridiga som viktiga motgångsfaktorer. Med grund i studiens resultat dras slutsatsen att vårdnadshavares samtycke kan väga tyngre än barns behov i barnavårdutredningars beslut och att barnets bästa därmed inte alltid har högsta prioritet. Det dras även slutsatsen att det finns mycket som kan begränsa socialsekreterare i deras arbete, men att det också finns många möjligheter inom dessa begränsningar som socialsekreterare kan arbeta utifrån. / This study aims to investigate social workers' experiences of how children's needs and parental consent influence assessments and decisions in child welfare investigations. The study's previous research addresses assessments and decisions, consent and cooperation with parents, the best interests and needs of the child, the rights of children and parents, and the conditions for social workers. Semi-structured interviews were conducted with six social workers from two Swedish municipalities, using a convenience sample based on purposive sampling. The results show that social workers believe their assessments of children's needs are not influenced by parental consent. However, decisions regarding interventions are considered influenced by parental consent, provided there are no grounds for compulsory measures. Social workers identify treatment of clients, motivational work, knowledge of work opportunities, and work experience as key success factors. They see organizational limitations, resource shortages, negative perceptions of social services by guardians, and inadequate and conflicting laws as key obstacles. Based on the study's results, it is concluded that parental consent can outweigh children's needs in child welfare investigation decisions, and thus the best interest of the child is not always top priority. It is also concluded that while there are many limitations in their work, there are also numerous opportunities within these constraints that social workers can utilize. Child welfare investigations children's needs parental consent the best interest of the child social workers experiences Barnavårdsutredningar barns behov vårdnadshavares samtycke barnets bästa socialsekreterares erfarenheter Social Work Socialt arbete
574	"Pay or OK" : A law and business study on Meta's business model Petersdotter, Loovis, Eriksson Höglund, Julina January 2024 (has links) This study examines the business model of Meta called “Pay or OK”, a subscription modelthat offers users the choice to either consent to the use of Meta’s services and be subjected totargeted advertising or to use the service without personalized advertising for a fee. In the eraof digital transformation, where data has become a significant competitive advantage forlarge online platforms, the introduction of regulations like GDPR and DMA has beeninstrumental in protecting personal integrity and ensuring fair competition. This study utilizesqualitative and EU legal methods to analyze the “Pay or OK” business model from a legalperspective and also analyze if data could create competitive advantage for Meta,incorporating theories such as the resource-based view and the VRIO framework. The resultsof this study bring to the forefront the intriguing and contrasting opinions on the value ofpersonal data and the profound impact of regulations on the business landscape. “Pay or OK” GDPR personal data consent DMA resource-based view VRIO gatekeepers consumer data big data competitive advantage targeted advertising Law Juridik Business Administration Företagsekonomi
575	"O termo de consentimento livre e esclarecido e a pesquisa em seres humanos na área de saúde: uma revisão crítica" / The informed consent and the research in human beings within the health area : a critical review Slawka, Sérgio 05 August 2005 (has links) Para avaliar a efetividade do processo de obtenção do termo de consentimento livre e esclarecido (TCLE) no contexto da pesquisa clínica em seres humanos, foram realizadas análises sistematizadas sobre os principais elementos de sustentação do TCLE (bioética na pesquisa em seres humanos, direitos humanos do sujeito da pesquisa, história da obtenção do TCLE, e regulamentações brasileiras na pesquisa em seres humanos), assim como também análises sistematizadas sobre a efetividade dos principais processos envolvidos na obtenção do TCLE (comunicação médico-paciente, tomada de decisão pelo sujeito da pesquisa, e interpretação das expressões de probabilidade no TCLE pelo sujeito da pesquisa). Ainda que estes três processos envolvidos na obtenção do TCLE apresentem, individualmente, alguns procedimentos efetivos, verificou-se que a obtenção de um TCLE verdadeiramente autônomo é utópica e, portanto, o processo de obtenção do TCLE é considerado não-efetivo / In order to evaluate the effectiveness of the process for obtaining the informed consent (IC) within the context of clinical research in human beings, systematic-like analysis were performed on the key elements supporting the IC (bioethics within the research in human beings, human rights for the research subject, history of the obtainment for the IC, and Brazilian regulation within research in human beings), as well as systematic-like analysis on the effectiveness of the major processes involved in the obtainment for the IC (physician-patient communication, decision-making for the research subject, and interpretation of the probability expressions in the IC by the research subject). Eventhough these three processes involved in the obtainment for the IC present, individually, a few effective procedures, the obtainment of a truly autonomous IC is utopia and thus the process for obtaining the IC is considered non-effective BIOETHICS/trends BIOÉTICA/tendências CONSENTIMENTO ESCLARECIDO/história DECISION MAKING DIREITOS HUMANOS ETHICS MEDICAL ÉTICA MÉDICA EXPERIMENTAÇÃO HUMANA HUMAN EXPERIMENTATION HUMAN RIGHTS INFORMED CONSENT/history PHYSICIAN-PATIENT RELATIONS PROBABILIDADE PROBABILITY RELAÇÕES MÉDICO-PACIENTE TOMADA DE DECISÕES
576	落空的權利—從法律多重製圖觀點看日月潭邵族原住民族土地同意權的實踐 / The Hollow Rights: The Practice of Thao’s Indigenous Land Rights in Taiwan from the Perspective of "Multi-Layered Mapping of Law" 沈世祐, Shen, Shih Yu Unknown Date (has links) 《原住民族基本法》於2005年通過，是台灣原住民族運動努力多年的成果，但是近年來原住民族仍持續面對各種壓迫。在土地權利方面，該法第21條規定政府或私人於原住民族土地進行開發利用時，需事先諮詢當地原住民族之同意或參與（簡稱「同意權」），然而在許多案件中，原住民族主張此條文表達反對時，經常未能得到行政部門正面回應。本研究以日月潭邵族反對向山旅館開發案為例，理解「同意權」如何變成「落空的權利」。許多文獻討論，將原住民族權利與實踐的落差歸因於「個人權」（individual right）與「集體權」（collective right）兩種概念的差異及行政部門本位主義因素。本研究則想更進一步釐清，又有哪些其他因素也影響原住民族權利的落實？在這些因素的影響下，「同意權」的規範運作又產生了何種實際效用？本研究將從「法律多重製圖」之觀點回答上述問題，首先將探究「同意權」概念在國際法、國內法與行政實踐中的規範生產與運作，分析在不同的場域下，場域內的參與者如何對「同意權」進行法律製圖。本文主張，法律生產過程中對權利概念的意義內涵轉換、法律生產與運作場域的邏輯結構，皆影響原住民族權利的實踐。同時，本研究進一步以日月潭邵族的案例，說明原住民族土地權中「自由與事先知情同意原則」或「同意權」規範，理想上是以原住民族的「參與」並實現自決權為目標，但在邵族的案例中，實際運作卻是不斷「排除」原住民族的過程，法律成為排除原住民族權利的合理化機制，更避開各種議題對立面的討論。權利的落空一方面指權利主張不被理解與正視，更進一步指原住民族社會愈遠離「集體」的過程，因而我們需對原住民族同意權或各種集體權的運作有更多的反省，並持續探詢屬於每個部落或族群中所謂「好生活」（good life）的意義。本文最後藉用「草根後現代主義」（grassroots post-modernism）之概念，介紹原住民族在追求「好生活」的道路上，如何藉著在地思考、找回與族群內部的連結，以此對抗全球化、新自由主義趨勢下對原住民族權利的影響與侷限。 / Though its enactment in 2005 can be regarded as an achievement of Indigenous movement in Taiwan, The Indigenous Peoples Basic Law does not work as it promises. The indigenous people are still struggling for the fulfillment of rights. With respect to land rights, Article 21 of the Law requires the participation and consent of local indigenous people before the development and utilization of the indigenous land. However, the article is often neglected by the government in many cases. This case study then focuses on Thao people （邵族）who live around Sun-Moon Lake （日月潭）and their opposition to a Hotel program located in Xiangshan（向山）, which is regarded as the traditional territory of Thao. By adopting the perspective of “Multi-Layered Mapping of Law”, I hope to analyze the enactment process and the effect of law concerning the principle of Free, Prior and Informed Consent as well as land rights of indigenous people, and try to describe how the “right to consent” becomes a “hollow right” in practice. The study depicts the right as “hollow” for two meanings. On the one hand, it shows the situation for indigenous people facing the gap between the law’s promise and law’s practice in the complex process of law making and law enforcement. On the other hand, it further describes the more distance from collectiveness within indigenous society. The study suggests that more dialogue and more reflection is needed when claiming rights. The last part of the study then introduces the idea of “grassroots post-modernism” which discuss the way to “Good Life" and the way of resistance against globalization and neoliberalism. Although the issues need further discussion in future studies, the idea can be a guidance for indigenous people as they pursue the fulfillment of land rights, autonomy and self-determination. 原住民族土地權自由與事先知情同意原則同意權邵族法律多重製圖草根後現代主義 Indigenous land rights Free Prior and Informed Consent Right to Consent Thao Multi-Layered Mapping of Law Grassroots post-modernism
577	An investigation of informed consent in clinical practice in South Africa Chima, Sylvester Chidi 02 1900 (has links) This study was designed to evaluate the quality of informed consent practiced by healthcare professionals in South Africa using an empirical quantitative methodology combined with medicolegal analysis to produce an interdisciplinary thesis on bioethics and medical law. Informed consent is an ethical and legal doctrine derived from the principle of respect for autonomy, whereas the rights to bodily integrity, privacy and human dignity are constitutionally protected in South Africa. The National Health Act 61 of 2003 codified requirements for informed consent by stipulating that healthcare providers must inform healthcare users about diagnosis, risks, benefits, treatment options, and the right of refusal, while taking into consideration users language and literacy levels. However, African communities are inherently challenged by problems of poverty, poor education, power asymmetry, and unfamiliarity with libertarian rights-based autonomy, which could affect informed consent practice. An empirical study was conducted at randomly selected public hospitals in EThekwini metropolitan municipality involving 927 participants; comprising 168 medical doctors, 355 professional nurses, and 404 patients. The study showed that healthcare professionals had limited knowledge regarding ethical and legal requirements for informed consent, and were partially compliant with current informed consent regulations. Barriers to informed consent identified were language, poor education, workload, and lack of interpreters. Most patients attending public hospitals were indigent, but preferred full information disclosure, and a shift from informed to shared-healthcare decision-making. The study recommends that a corps of trained interpreters should be introduced at public hospitals. This will improve providerpatient communications and minimize workloads, increase job satisfaction, and the overall quality of healthcare service delivery. Analysis of recent South African case law on informed consent revealed vacillations between the “reasonable doctor” and “prudent patient” standards of information disclosure which are inconsistent with the jurisprudence from comparative foreign common law jurisdictions. Therefore, South African court judgments on informed consent ought to be re-evaluated to establish a uniform standard of information disclosure consistent with international jurisprudence, current legislation, and constitutional protections relating to human dignity and security of the person. / Jurisprudence / LL. D. Empirical bioethics Doctors Health law Informed consent Medical law Legislation Nurses Patients Public hospitals Regulation Jurisprudence South Africa 344.412068
578	"O termo de consentimento livre e esclarecido e a pesquisa em seres humanos na área de saúde: uma revisão crítica" / The informed consent and the research in human beings within the health area : a critical review Sérgio Slawka 05 August 2005 (has links) Para avaliar a efetividade do processo de obtenção do termo de consentimento livre e esclarecido (TCLE) no contexto da pesquisa clínica em seres humanos, foram realizadas análises sistematizadas sobre os principais elementos de sustentação do TCLE (bioética na pesquisa em seres humanos, direitos humanos do sujeito da pesquisa, história da obtenção do TCLE, e regulamentações brasileiras na pesquisa em seres humanos), assim como também análises sistematizadas sobre a efetividade dos principais processos envolvidos na obtenção do TCLE (comunicação médico-paciente, tomada de decisão pelo sujeito da pesquisa, e interpretação das expressões de probabilidade no TCLE pelo sujeito da pesquisa). Ainda que estes três processos envolvidos na obtenção do TCLE apresentem, individualmente, alguns procedimentos efetivos, verificou-se que a obtenção de um TCLE verdadeiramente autônomo é utópica e, portanto, o processo de obtenção do TCLE é considerado não-efetivo / In order to evaluate the effectiveness of the process for obtaining the informed consent (IC) within the context of clinical research in human beings, systematic-like analysis were performed on the key elements supporting the IC (bioethics within the research in human beings, human rights for the research subject, history of the obtainment for the IC, and Brazilian regulation within research in human beings), as well as systematic-like analysis on the effectiveness of the major processes involved in the obtainment for the IC (physician-patient communication, decision-making for the research subject, and interpretation of the probability expressions in the IC by the research subject). Eventhough these three processes involved in the obtainment for the IC present, individually, a few effective procedures, the obtainment of a truly autonomous IC is utopia and thus the process for obtaining the IC is considered non-effective BIOÉTICA/tendências CONSENTIMENTO ESCLARECIDO/história DIREITOS HUMANOS ÉTICA MÉDICA EXPERIMENTAÇÃO HUMANA PROBABILIDADE RELAÇÕES MÉDICO-PACIENTE TOMADA DE DECISÕES BIOETHICS/trends DECISION MAKING ETHICS MEDICAL HUMAN EXPERIMENTATION HUMAN RIGHTS INFORMED CONSENT/history PHYSICIAN-PATIENT RELATIONS PROBABILITY
579	Les soins psychiatriques sans consentement en droit contemporain / Psychiatric care without consent in contemporary law Bérard, Karine 31 October 2017 (has links) Le régime juridique des soins psychiatriques sans consentement et les dispositions légales qui l’entourent sont le fruit de la longue évolution de la collectivité à prendre en charge les personnes atteintes de troubles psychiques. Cette maturation, qui témoigne de l’équilibre fragile entre le respect des libertés fondamentales et les impératifs d’ordre public, explique en grande partie la reconnaissance tardive de ces patients vulnérables comme véritables sujets de droit. A travers la loi n°2011-803 du 5 juillet 2011 et la loi n°2013-869 du 27 septembre 2013, le législateur a conservé le système médico-administratif des soins sans consentement qu’il a érigé au XIXe siècle. Néanmoins, via ces deux dernières réformes, il l’a atténué en introduisant un contrôle obligatoire du Juge des libertés et de la détention et a élargi ces prises en charge aux soins ambulatoires. Ce système est caractérisé par une dualité des modalités d’admission : les soins à la demande du représentant de l’Etat (S.D.R.E.) d’une part, et les soins à la demande d’un tiers (S.D.T.) d’autre part. Ces deux blocs sont eux-mêmes subdivisés en une pluralité de mesures, chacune justifiée pour des motifs divers : urgence, absence de tiers, circonstances de fait, existence d’un trouble grave à l’ordre public ou à la sûreté des personnes… Si le régime juridique des soins sans consentement est censé prévoir une prise en charge adaptée à chaque situation particulière, en réalité, ces orientations sont souvent prises pour des raisons d’opportunité et ne correspondent pas toujours à la réalité. Les contentieux issus de ce régime juridique d’exception témoignent des nombreuses atteintes aux droits subies par les patients qui en font l’objet. Pour ces raisons, un toilettage de fond peut être envisagé. Il passerait par la fusion des deux blocs d’admission en un seul, par le prononcé des mesures par le juge et par un renforcement de la protection des droits et des libertés, dispositions qui devront s’entourer de garanties plus effectives et de contrôles plus appuyés. / The legal regime of the psychiatric care without consent, and the relevant legal provisions that surround it, are the direct consequence of the long-term development of the society in managing the mentally disabled people. This process of maturing, which reflects the delicate balance between the respect for fundamental freedoms and the imperatives of public order, mainly explains the rather belated recognition of these vulnerable patients as real subjects of rights. Through the law n°2011-803 of 5 July 2011 and the law n°2013-869 of 27 September 2013, the legislator maintained the model of care and medical administrative system without consent, dating from the nineteenth century. Nevertheless, through these last two reforms, the system has been attenuated by the introduction of a mandatory control of the liberty and custody judge and expanded these medical cares at the ambulatory. This system is characterised by its own duality in terms of admission rules: the request for care on demand of the representative of State (S.D.R.E.) on the one hand, and of a third party (S.D.T.) on the other hand. These two sets of procedures themselves are subdivided in a plurality of actions, each one justified on various purposes: urgency, absence of a third party, factual circumstances, existence of a serious public disorder or threat to the safety of individuals… Even if the legal regime for the medical care without consent is supposed to provide an appropriate care for each and every specific situations, often these policies are actually set for opportunistic reasons and do not always match reality. The disputes resulting from this exception legal regime demonstrate the many human rights violations suffered by the concerned patients. For these reasons, some tidying up can be envisaged. The latter would involve the merging of the two sets of procedures, the issuance of measures by the judge himself and a strengthening of the protection of civil rights and freedoms, provisions which will have to be surrounded by more effective safeguards and stronger controls. Psychiatrie Soins sans consentement Consentement aux soins Loi n°2011-803 du 5 juillet 2011 Loi n°2013-869 du 27 septembre 2013 Droits des patients Psychiatry Psychiatric care without consent Consent to care Law n°2011-803 of 5 July 2011 Law n°2013-869 of 27 September 2013 Patient rights 340
580	RISK, RESPECT & UNSPEAKABLE ACTS : Untangling Intimate-Sexual Consent through 'Intuitive Inquiry' & 'Agential Realism' / RISK, RESPEKT & OBESKRIVLIGA HANDLINGAR : 'Untangling' intimt-sexuellt samtycke genom 'Intuitive Inquiry' & 'Agential Realism' Storm, Frida January 2021 (has links) In an attempt to address the issues in research and theory on consent, this thesis explores what consent can be seen as "doing" through an 'Intuitive Inquiry' (Anderson 2011a) and 'Agential Realism' (Barad 2007). Various manifestations of consent appears through: the experience of the researcher, consent research and theory, consent legislation, interviews with professionals in intimate-sexual consent, and, feminist fanzines. Consent evokes issues around agency, power, communication, respect, violence, risk, morals and ethics that go beyond sexual-intimate negotiation. Consent emerges as multiple, complex and fluid in 'intra-action' (ibid.) with the context. Entanglements and paradoxes of consent are further explored in 'diffractive analysis' (ibid.) through "bodily autonomy" and"rights/obligations". As a phenomenon, consent appears to make agency and power intelligible (to different degrees), but, can not be said to provide a viable strategy against sexual violence. The tenets of consent discourse risk (re)producing anxieties around intimacy and sex, responsibilizing survivors and obfuscating sexual violence. Further and improved research on communication in everyday sexual negotiation, sexual violence, consent legislation and what consent "does" is urgently needed.Through creative method and new epistemology the thesis (re)presents a knowledge process true to lived experience, as well as, an invitation to pull the terrible wonderful world, it's complexities, and us in it, closer. / I ett försök att ta itu med problem inom forskning och teori om 'consent' undersöker denna avhandling vad samtycke kan ses som ”göra” genom 'Intuitiv Inquiry' (Anderson 2011a) och'Agential Realism' (Barad 2007). Olika manifestationer av 'consent' framträder genom: forskarens erfarenheter, samtyckes-forskning och teori, samtyckelagstiftning, intervjuer med professionella inom samtycke, och, feministiska fanzines. Samtycke väcker frågor kring agens, makt, kommunikation, respekt, våld, risk, moral och etik som går bortom sexuella-intima förhandlingar. Samtycke framträder som multipelt, komplext och rörligt i 'intra-action' (ibid.) med kontexten. 'Entanglements' och paradoxer inom samtycke undersöks vidare i 'diffraktiv analys' (ibid.) genom "kroppslig autonomi" och"rättigheter/skyldigheter". Som ett fenomen gör samtycke agens och makt möjlig att tänka (iolika grad), men kan inte sägas bidra med en hållbar strategi mot sexuellt våld. Grundsatserna i samtyckesdiskursen riskerar att (re)producera ängsla kring intima-sexuella situationer, responsibilisera offer och dölja sexuellt våld. Ytterligare och förbättrad forskning är i akut behov kring kommunikation i vardagliga sexuella förhandlingar, sexuellt våld, samtyckeslagstiftning och vad samtycke "gör". Genom kreativ metod och ny epistemologi (re)presenterar avhandlingen en kunskapsprocesssom är trogen till levd verklighet, samt en inbjudan att närma sig, den fruktansvärda underbara världen, dess komplexitet, och oss inom den. Doing Consent Communication Intuition Somatics Intimacy Sex Sexual Violence Negotiation Coercion Rape Legislation Feminism Neoliberal Queer Fanzine BDSM Dance Performance Sex Work Responsibilization Accountability Diffraction Entanglement Autonomy Agency Power Trauma. Görande samtycke consent kommunikation intuition somatik intimitet sex sexuellt våld förhandling tvång våldtäkt lagstiftning feminism nyliberalism queer fanzine BDSM dans uppträdande sexarbete responsibilisering ansvar diffraction entanglement autonomi agens makt trauma. Gender Studies Genusstudier

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